HACHQ has developed and licensed Patient Reported Outcomes surveys over the last twenty years. These measures are made available for limited use licensure by all researchers - including academic researchers, pharmaceutical firms, clinical care providers, and governmental and organizational investigators. Licenses have been approved and granted to thousands of researchers and companies to document functional health status and measure changes in health over time. Our surveys include the CHQ and ITQOL - legacy surveys focused on pediatric overall quality of life. The Company also develops and licenses condition-specific surveys to dimension the functional outcomes and impacts of defined health conditions.
A rigorous multi-staged approach is the focus of developing new and existing surveys. This comprehensive process includes direct input from adult and child patients and their families - as well as from clinical and academic experts through a qualitative interview process.
HACHQ employs the Likert method of summated ratings to design all of our surveys. This method is preferred because it is based on scaling assumptions that can be empirically tested and allows for simplicity in scoring and interpreting findings. The summative approach is the hallmark method used in the construction and evaluation of widely accepted quality of life measures for both adults and children.
- Graduated response continuums such as "a lot" to "not at all" and "very satisfied" to "very dissatisfied" are used.
- Scale scores are computed by deriving the algebraic mean of each scale and transforming the raw score on a 0-to-100 continuum.
- Using standard scoring conventions, a higher score is always more favorable.
- HACHQ scoring manuals are available exclusively on CD's for licensed users.
With the use of all PRO Surveys, familiarity with clinical and scientific research skills and methods are recommended. Scoring the scales – the sets of items – in each of the HACHQ surveys requires basic programming skills and a familiarity with SPSS, SAS, STATA, EXCEL, or an equivalent statistical database and analytic software program. HealthActCHQ’s proprietary scoring algorithms are provided to each licensed user in our CD User Manuals to guide you in creating the code for calculating individual scale score means – profiles - for each survey, as well as the component summary scores when warranted as with the Child Health Questionnaire parent-reported surveys.
Due to intellectual property considerations, surveys are not made available for review prior to completion of a License Agreement and the payment of fees. The survey content is presented at this website for review and has been effectively used for both IRB and Ethics submissions. Survey information may be downloaded in pdf format for regulatory submissions.
- AIM-A: ADHD Impact Module - Adult™
- AIM-C: ADHD Impact Module - Child™
- CHQ: Child Health Questionnaire™
- FIPRE: Fragile Infant Parent Readiness Evaluation™
- ITQOL: Infant Toddler Quality of Life Questionnaire™
- NICU FITS: Neonatal Intensive Care Unit Fragile Infant Transition Summary™
- PAVE: Patient After the Visit Evaluation™
- PEMQOL: Pediatric Enuresis Module to Assess Quality of Life™
- PRO-SF1: Patient Respiratory Outcomes Short-Form™