Bibliography

Use of the Bibliography
The HealthActCHQ Bibliography tracks peer-reviewed manuscripts that have been published documenting use of the Company's PRO Surveys. It is provided as a professional courtesy to allow you to further investigate studies addressing the development, validation, uses, and effectiveness of the HACHQ measures.

The Bibliography is searchable by keyword in the text box provided. Your keyword searches will generate a list of all associated manuscripts. On the Search page, you will have the option to save your search findings as a pdf file that may be printed for your future and further use.

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All Entries (632 Results)

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  1. Aitken ME, Tilford JM, Barrett KW, Parker JG, Simpson P, Landgraf J, Robbins JM. Health status of children after admission for injury. Pediatrics 2002;110(2 Pt 1):337-342.
  2. Akel BS, Oksüz C, Oskay D, Fırat T, Tarakcı E, Leblebicioğlu G. Health-related quality of life in children with obstetrical brachial plexus palsy. Qual Life Res. 2013 Feb 20. [Epub ahead of print]
  3. Akerstedt A, Risto O, Odman P, Oberg B. Evaluation of single event multilevel surgery and rehabilitation in children and youth with cerebral palsy--A 2-year follow-up study. Disabil Rehabil. 2010;32(7):530-9.
  4. Alonso EM, Neighbors K, Barton FB, McDiarmid SV, Dunn SP, Mazariegos GV Landgraf JM, Bucuvalas JC, and the Studies of Pediatric Liver Transplant Research Group. Health Related Quality of Life and Family Function Following Pediatric Liver Transplantation. Liver Transplantation, 2008; 14(4):460-8. Published Online: Mar 26 2008 DOI: 10.1002/lt.21352.
  5. Alonso EM, Neighbors K, Mattson C, Sweet E, Ruch-Ross H, Berry C, Sinacore J. Functional outcomes of pediatric liver transplantation. J Pediatr Gastroenterol Nutr, 2003; 37(2):155-60.
  6. Anderson PA, Sleeper LA, Mahony L, Colan SD, Atz AM, Breitbart RE, Gersony WM, Gallagher D, Geva T, Margossian R, McCrindle BW, Paridon S, Schwartz M, Stylianou M, Williams RV, Clark BJ 3rd; Pediatric Heart Network Investigators. Contemporary outcomes after the Fontan procedure: a Pediatric Heart Network multicenter study. J Am Coll Cardiol. 2008 Jul 8;52(2):85-98.
  7. Apaz MT, Saad-Magalhaes C, Pistorio A, Ravelli A, de Oliveira Sato J, Marcantini MB, Meiorin S, Filcamo G, Pilkington C, Maillard S, Al-Mayouf S, Prahalad S, Fasth A, Joos R, Schikler K, Mozolova D, Landgraf JM, Martini A, Ruperto N for the Pediatric Rheumatology International Trials Organisation (PRINTO). Health-related quality of life of patients with juvenile dermatomyositis: Results from the Paediatric Rhematology International Trials Organisation multinational quality of life cohort study. Arthritis Rheum. 2009 Apr 15;61(4):509-17. MID: 19333974 [PubMed - indexed for MEDLINE]
  8. Aran A, Shalev RS, Biran G, Gross-Tsur V. Parenting style impacts on quality of life in children with cerebral palsy. J Pediatr, 2007;151(1): 56-60, 60.e1
  9. Arnstad ED, Rypdal V, Peltoniemi S, Herlin T, Berntson L, Fasth A, Nielsen S, Glerup M, Ekelund M, Zak M, Aalto K, Nordal E, Romundstad PR, Rygg M2; Nordic Study Group of Pediatric Rheumatology (NoSPeR). Early self-reported pain in juvenile idiopathic arthritis (JIA) is related to long-term outcomes. Results from the Nordic JIA cohort study. Arthritis Care Res (Hoboken). 2018 Jul 28. doi: 10.1002/acr.23715. [Epub ahead of print]
  10. Arrington-Sanders R, Yi MS, Tsevat J, Wilmott RW, Mrus JM, Britto MT. Gender differences in health-related quality of life of adolescents with cystic fibrosis. Health Qual Life Outcomes, 2006;4:5
  11. Asmussen L, Olson LM, Grant EN, Landgraf JM, Fagan J, Weiss KB. Use of the Child Health Questionnaire in a sample of moderate and low-income inner-city children with asthma. American Journal of Respiratory and Critical Care Medicine 2000;162(4 Part 1):1215-1221.
  12. Atasavun Uysal S, Düger T, Elbasan B, Karabulut E, Toylan ?. Reliability and Validity of The Cerebral Palsy Quality of Life Questionnaire in The Turkish Population. Reliability and Validity of The Cerebral Palsy Quality of Life Questionnaire in The Turkish Population.
  13. Atz AM, Cohen MS, Sleeper LA, McCrindle BW, Lu M, Prakash A, Breitbart RE, Williams RV, Sang CJ, Wernovsky G; Investigators of the Pediatric Heart Network. Functional state of patients with heterotaxy syndrome following the Fontan operation. Cardiol Young. 2007 Sep;17 Suppl 2:44-53.
  14. Ausili E, Marte A, Brisighelli G, Midrio P, Mosiello G, La Pergola E, Lombardi L, Iacobelli BD, Caponcelli E, Meroni M, Leva E, Rendeli C. Short versus mid-long-term outcome of transanal irrigation in children with spina bifida and anorectal malformations. Childs Nerv Syst. 2018 Dec;34(12):2471-2479. doi: 10.1007/s00381-018-3860-4. Epub 2018 Jun 12.
  15. Ausili E, Tabacco F, Focarelli B, Padua L, Crea F, Caliandro P, Pazzaglia C, Marietti G, Rendeli C. Multidimensional study on quality of life in children with type 1 diabetes. Eur Rev Med Pharmacol Sci, 2207;11(4):249-55.
  16. Austin JK, Perkins SM, Johnson CS, Fastenau PS,Byars AW, deGrauw TJ, Dunn DW. Self-esteem and symptoms of depression in children with seizures: Relationships with neuropsychological functioning and family variables over time. Epilepsia, 51(10):2074–2083, 2010 doi: 10.1111/j.1528-1167.2010.02575.x
  17. B.Whitley CB, Cleary M, Mengel KE, Harmatz P., Shapiro E, Nestrasil., Haslett P., Whiteman D., Alexanderian, D. Observational Prospective Natural History of Patients with Sanfilippo Syndrome Type B. 2017 J PEDS https://doi.org/10.1016/j.jpeds.2018.01.044
  18. Baca CB, Vickrey BG, Caplan R, Vassar SD, Berg AT. Psychiatric and medical comorbidity and quality of life outcomes in childhood-onset epilepsy. Pediatrics. 2011 Dec;128(6):e1532-43. Epub 2011 Nov 28.
  19. Baca CB, Vickrey BG, Hays RD, Vassar SD, Berg AT. Differences in child versus parent reports of the child's health-related quality of life in children with epilepsy and healthy siblings. Value Health. 2010 Sep-Oct;13(6):778-86. doi: 10.1111/j.1524-4733.2010.00732.x.
  20. Baca CB, Vickrey BG, Vassar SD, Berg AT. Seizure recency and quality of life in adolescents with childhood-onset epilepsy. Epilepsy Behav. 2012 Jan;23(1):47-51. Epub 2011 Dec 1.
  21. Bachmmann C, Ackmann C, Janhsen E, Steuber C, Bachmann H, Lehr D. (2010) Clinical evaluation of the short-form pediatric enuresis module to assess quality of life. Neurourol Urodyn;29(8):1397-402.
  22. Badia Llach X, Benavides Ruiz A, Rajmil Rajmil L. Instruments for measuring health-related quality of life in children and adolescents with asthma. An Esp Pediatr, 2001;54(3):213-21.
  23. Bae SC, Ruperto N, Lee JH, Uhm WS, Park YM, Kim SY, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Korean version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S96--S100.
  24. Bai G, Herten MH, Landgraf JM, Korfage IJ, Raat H. Childhood chronic conditions and health-related quality of life: Findings from a large population-based study. PLoS One. 2017 Jun 2;12(6):e0178539. doi: 10.1371/journal.pone.0178539. eCollection 2017.
  25. Baildam EM, Ennis H, Foster HE, Shaw L, Chieng AS, Kelly J, Herrick AL, Richards HL. Influence of childhood scleroderma on physical function and quality of life. J Rheumatol. 2011 Jan;38(1):167-73. Epub 2010 Nov 1
  26. Baker AL, Gauvreau K, Newburger J, Jenkins K. Late impact of Kawasaki Disease on physical and psychosocial health in children. Abstract presentation at the 6th International Kawasaki Disease Symposium, Waikoloa, Hawaii. February 1999.
  27. Baker AL, Gauvreau K, Newburger J, Jenkins K. Physical and psychosocial health in patients who have had Kawasaki Disease. Abstract presentation at the World Congress of Pediatric Cardiology, Toronto, Canada. May 2001.
  28. Baker AL, Gauvreau K, Newburger JW, Sundel RP, Fulton DR, Jenkins KJ. Physical and psychosocial health in children who have had Kawasaki disease. Pediatrics 2003;111(3):579-83.
  29. Baldassari CM, Mitchell RB, Schubert C, Rudnick EF. Pediatric obstructive sleep apnea and quality of life: a meta-analysis. Otolaryngol Head Neck Surg, 2008;138(3):265-273.
  30. Baldwin JN, McKay MJ, Hiller CE, Moloney N, Nightingale EJ, Burns J. Relationship between physical performance and self-reported function in healthy individuals across the lifespan. Musculoskelet Sci Pract. 2017 Aug;30:10-17. doi: 10.1016/j.msksp.2017.05.001. Epub 2017 May 2.
  31. Bandeira M, Falcone A, Pistrio A, Ruoerto N, Magni-Manzoni S, Buoncompagni A, Sala E, Loy A, Martini A, Ravelli A. Weighting improves the information provided by joint counts on the severity of arthritis and its impact on patients' well-being in juvenile idiopathic arthritis. Rheumatology (Oxford)2006;45(3):343-7.
  32. Banks BA, Borrowman NJ, Klaassen R. Health-related quality of life: changes in children undergoing chemotherapy. J Pediatr Hematol Oncol,2008;30(4): 292-7.
  33. Banks L, Dipchand AI, Manlhiot C, Millar K, McCrindle BW. Factors associated with low physical activity levels following pediatric cardiac transplantation. Pediatr Transplant. 2012 Nov;16(7):716-21. doi: 10.1111/j.1399-3046.2012.01706.x. Epub 2012 May 21.
  34. Banks L, Lin YT, Chahal N, Manlhiot C, Yeung RS, McCrindle BW. Factors associated with low moderate-to-vigorous physical activity levels in pediatric patients with Kawasaki disease. Clin Pediatr (Phila). 2012 Sep;51(9):828-34. doi: 10.1177/0009922812441664. Epub 2012 Apr 20.
  35. Bannink EM, van Pareren YK, Theunissen NC, Raat H, Mulder PG, Hokken-Koelega AC. Quality of life in adolescents born small for gestational age: does growth hormone make a difference? Horm Res,2005:64(4):166-74.
  36. Bannink N, Maliepaard M, Raat H, Joosten KF, Mathijssen IM. Health-related quality of life in children and adolescents with syndromic craniosynostosis.J Plast Reconstr Aesthet Surg. 2010 Dec;63(12):1972-81. Epub 2010 Mar 10.
  37. Barbosa-Resende W , Rangel Vde O , Frontarolli AC , Araújo RR , da Silva CH , Pinto Rde M , Morales Nde M . Psychometric Properties of the Autoquestionnaire Qualité De Vie Enfant Imagé (AUQEI) Applied to Children with Cerebral Palsy. PLoS One. 2015 Feb 11;10(2):e0115643. doi: 10.1371/journal.pone.0115643. eCollection 2015.
  38. Barrera M, Gee C, Andrews GS, Armstrong CA, Saunders FE. Health-related quality of life of children and adolescents prior to hematopoietic progenitor cell transplantation: diagnosis and age effects. Pediatr Blood Cancer, 2006;47(3): 320-6.
  39. Bartonek A, Saraste H, Danielsson A. Health-related quality of life and ambulation in children with myelomeningocele in a Swedish population. Acta Paediatr. 2012 Sep;101(9):953-6. doi: 10.1111/j.1651-2227.2012.02742.x. Epub 2012 Jun 19.
  40. Beckung E, White-Koning M, Marcelli M, McManus V, Michelsen S, Parkes J, Parkinson K, Thyen U, Arnaud C, Fauconnier J, Colver A. Health status of children with cerebral palsy living in Europe: a multi-centre study. Child Care Health Dev. 2008 Nov;34(6):806-14.
  41. Belfort, M.B., Woodward, L.J., Cherkerzian, S. et al. Targeting human milk fortification to improve very preterm infant growth and brain development: study protocol for Nourish, a single-center randomized, controlled clinical trial. BMC Pediatr 21, 167 (2021). https://doi.org/10.1186/s12887-021-02635-x
  42. Benson PE1, Da'as T2, Johal A, Mandall NA, Williams AC, Baker SR, Marshman Z.Relationships between dental appearance, self-esteem, socio-economic status, and oral health-related quality of life in UK schoolchildren: A 3-year cohort study. Eur J Orthod. 2014 Dec 5. pii: cju076. [Epub ahead of print]
  43. Berger M, Murphy E, Riley P, Bergman GE; VIRTUE Trial Investigators. Improved quality of life, immunoglobulin G levels, and infection rates in patients with primary immunodeficiency diseases during self-treatment with subcutaneous immunoglobulin G. South Med J. 2010 Sep;103(9):856-63.
  44. Beverung LM1, Strouse JJ, Hulbert ML, Neville K, Liem RI, Inusa B, Fuh B, King A, Meier ER, Casella J, DeBaun MR, Panepinto JA; for the SIT trial investigators. Health-related quality of life in children with sickle cell anemia: Impact of blood transfusion therapy. Am J Hematol. 2014 Oct 27. doi: 10.1002/ajh.23877. [Epub ahead of print]
  45. Bhatia S, Jenney ME, Wu E, Bogue MK, Rockwood TH, Feusner JH, Friedman DL, Robison LL, Kane RL. The Minneapolis-Manchester Quality of Life instrument: Reliability and validity of the Youth Form. J Pediatr, 2004; 145(1): 39-46.
  46. Bhatia S., Jenney M.E., Bogue M.K., Rockwood T.H., Feusner J.H., Friedman D.L., Robison L.L., & Kane R.L. The Minneapolis-Manchester Quality of Life instrument: reliability and validity of the Adolescent Form. Journal of Clinical Oncology 2002;20(24:4692-4698.
  47. Bhatt SM, Goldmuntz E, Cassedy A, Marino BS, Mercer-Rosa L. Quality of Life is Diminished in Patients with Tetralogy of Fallot with Mild Residual Disease: A Comparison of Tetralogy of Fallot and Isolated Valvar Pulmonary Stenosis. Pediatr Cardiol. 2017 Dec;38(8):1645-1653. doi: 10.1007/s00246-017-1709-3. Epub 2017 Aug 31.
  48. Biederman J, Spencer TJ, Newcorn JH, Gao H, Milton DR, Feldman PD, Witte MM. Effect of comorbid symptoms of oppositional defiant disorder on responses to atomoxetine in children with ADHD: a meta-analysis of controlled clinical trial data. Psychopharmacology (Berl). 2007 Jan;190(1):31-41. Epub 2006 Nov 9
  49. Bindels-de Heus K, ten Hooven-Radstaake M, Legerstee JS, ten Hoopen LW, ENCORE Expertisecenter for AS, Dieleman GC, Moll HA, Mous SE, de Wit MCY. Sleep problems in children with Angelman Syndrome: The effect of a behavioral intervention program. Research in Developmental Disabilities Volume 135, April 2023, 104444. https://doi.org/10.1016/j.ridd.2023.104444
  50. Bjornson KF, Belza B, Kartin D, Logsdon RG, McLaughlin J. Self-reported health status and quality of life in youth with cerebral palsy and typically developing youth. Arch Phys Med Rehabil,2008;89(1): 121-7.
  51. Blake H, Quirk H, Leighton P, Randell T, Greening J, Guo B, Glazebrook C. Feasibility of an online intervention (STAK-D) to promote physical activity in children with type 1 diabetes: protocol for a randomised controlled trial. Trials. 2016 Dec 8;17(1):583.
  52. Bond C, Youngson G, MacPherson I, Garrett A, Bain N, Donald S, Macfarlane TV. Anal plugs for the management of fecal incontinence in children and adults: a randomized control trial. J Clin Gastroenterol,2007;41(1):45-53.
  53. Borres N, Nilsson N, Drake I, Sjölander S, Nilsson C, Hedlin G, Nordlund B.. Parents' perceptions are that their child's health-related quality of life is more impaired when they have a wheat rather than a grass allergy. Acta Paediatr. 2017 Mar;106(3):478-484. doi: 10.1111/apa.13688. Epub 2016 Dec 20.
  54. Boykin RE, McFeely ED, Shearer D, Frank JS, Harrod CC, Nasreddine AY, Kocher MS. Correlation between the child health questionnaire and the international knee documentation committee score in pediatric and adolescent patients with an anterior cruciate ligament tear. J Pediatr Orthop. 2013 Mar;33(2):216-20. doi: 10.1097/BPO.0b013e3182745439.
  55. Brasil TB, Ferriani VP, Machado CS. Health related quality of life survey about children and adolescents with juvenile idiopathic arthritis. Pediatr (Rio J),2003;79(1):63-8.
  56. Bray P, Bundy AC, Ryan MM, North KN, Burns J. Health status of boys with Duchenne muscular dystrophy: a parent's perspective. J Paediatr Child Health. 2011 Aug;47(8):557-62. doi: 10.1111/j.1440-1754.2011.02022.x. Epub 2011 Mar 10.
  57. Britto MT, Kotagal UR, Chenier T, Tsevat J, Atherton HD, Wilmott RW. Differences between adolescents' and parents' reports of health-related quality of life in cystic fibrosis. Pediatr Pulmonol, 2004;37(2):165-71.
  58. Britto MT, Kotagal UR, Hornung RW, Atherton HD, Tsevat J, Wilmott RW. Impact of recent exacerbations on quality of life in patients with cystic fibrosis. Chest, 2002;121(1):64-72.
  59. Brown EA1, Kenardy JA2, Dow BL2. PTSD Perpetuates Pain in Children With Traumatic Brain Injury. J Pediatr Psychol. 2014 Jun;39(5):512-20. doi: 10.1093/jpepsy/jsu014. Epub 2014 Apr 11.
  60. Brown RT, Perwien A, Faries DE, Kratochvil CJ, Vaughan BS. Atomoxetine in the management of children with ADHD: effects on quality of life and school functioning. Clinical Pediatrics 2006; 45 819-827.
  61. Brown TE, Landgraf JM Improvements in Executive Function Correlate With Enhanced Performance and Functioning and Health-Related Quality of Life: Evidence From 2 Large, Double-Blind, Randomized, Placebo-Controlled Trials in ADHD. PostGraduate Medicine, 2010;122(5):42-51.
  62. Bruijn J, Arts WF, Duivenvoorden H, Dijkstra N, Raat H, Passchier J. Quality of life in children with primary headache in a general hospital. Bruijn J, Arts WF, Duivenvoorden H, Dijkstra N, Raat H, Passchier J. Cephalalgia. 2009 Jan 23. [Epub ahead of print] PMID: 19175611
  63. Brunner HI, Higgins GC, Wiers K, Lapidus SK, Olson JC, Onel K, Punaro M, Ying J, Klein-Gitelman MS, Seid M. Health-related quality of life and its relationship to patient disease course in childhood-onset systemic lupus erythematosus. J Rheumatol. 2009 Jul;36(7):1536-45. Epub 2009 Jun 1.
  64. Buchanan CB, Stallworth JL, Scott AE, Glaze DG, Lane JB, Skinner SA, Tierney AE, Percy AK, Neul JL, Kaufmann WE. Behavioral profiles in Rett syndrome: Data from the natural history study. Brain Dev. 2019 Feb;41(2):123-134. doi: 10.1016/j.braindev.2018.08.008. Epub 2018 Sep 11.
  65. Buckstein DA, McGrath M, Buchner DA, Landgraf J, Goss TF. Evaluation of a short form for measuring health-related quality of life among pediatric asthma patients. Pediatrics 2000;106(6):1422-8.
  66. Buitelaar JK, Danckaerts M, Gillberg C, Zuddas A, Becker K, Bouvard M, Fagan J, Gadoros J, Harpin V, Hazell P, Johnson M, Lerman-Sagle T, Soutullo CA, Wolanczyk T, Zeiner P, Fouche DS, Krikke-Workel J, Zhang S, Michelson D. A prospective, multicenter, open label assessment of atomoxetine in non-North American children and adolescents with ADHD. Eur Child Adolesc Psychiatry, 2004; 13(4):249-57.
  67. Bukstein OG, Arnold LE, Landgraf JM, Hodgkins P. Does switching from oral extended-release methylphenidate to the methylphenidate transdermal system affect health-related quality-of-life and medication satisfaction for children with attention-deficit/hyperactivity disorder? Child Adolesc Psychiatry Ment Health. 2009 Dec 10;3(1):39.
  68. Bukstein OG, Arnold LE, Landgraf JM, Hodgkins P. Does switching from oral extended-release methylphenidate to the methylphenidate transdermal system affect health-related quality-of-life and medication satisfaction for children with attention-deficit/hyperactivity disorder? Child and Adolescent Psychiatry and Mental Health 2009, 3:39 doi:10.1186/1753-2000-3-39.
  69. Buysee CMP, Raat H, Hazelzet JA, Vermunt LCAC, Utens EMWJ, hop-Koen WCJ, Joosten FM. Long-term health-related quality of life in survivors of meningococcal septic shock in childhood and their parents. Quality of Life Research 2007;16:1567-76. DOI 10.1007/s11136-007-9271-8.
  70. Buysse CM, Raat H, Hazelzet JA, Hop WC, Maliepaard M, Joosten KF. Long-term health-related quality of life in survivors of meningoccal septic shock in childhood and their parents. Qual Life Res.2007;16:1567-76. DOI 10.1007/s11136-007-9271-8.
  71. Buysse CM, Raat H, Hazelzet JA, Hop WC, Maliepaard M, Joosten KF. Surviving meningoccal septic shock: health consequences and quality of life in children and their parents up to 2 years after pediatric intensive care unit discharge. Crit Care Med 2008; 36(2):596-602.
  72. Buysse CMP, Vermunt LCAC, Raat H, Hazelzet JA, Hop WC, Utens EMWJ, Joosten KFM. Surviving meningococcal septic shock in childhood: long-term overall outcome and the effect on health-related quality of life. Critical Care 2010;14:R124
  73. Byrne MW and Honig. Psychometrics of child health questionnaire parent short form (CHQ-28) used to measure quality of life in HIV-infected children on complex anti-retroviral therapy. Quality of Life Research 2005;14(7):1769-1774.
  74. Byrne MW, Honig J. Health-related quality of life of HIV-infected children on complex antiretroviral therapy at home. J Assoc Nurses AIDS Care,2006;17(2):27-35.
  75. Calvano C, Warschburger P.Quality of life among parents seeking treatment for their child's functional abdominal pain. Qual Life Res. 2018 Oct;27(10):2557-2570. doi: 10.1007/s11136-018-1916-2. Epub 2018 Jun 14.
  76. Cameron FJ, Clarke C, Hesketh K, White EL, Boyce DF, Dalton VL, Cross J, Brown M, Thies NH, Pallas G, Goss PW, & Werther GA. Regional and urban Victorian diabetic youth: clinical and quality-of-life outcomes. Journal of Paediatrics and Child Health 2002;38(6):593-596.
  77. Canty-Mitchell J, Austin JK, Perkins SM, Qi RA, and Swigonski N. Health-related quality of life in publicly insured children with special health care needs. Children's Health Care, 2005;34(1):1-18.
  78. Carbone JA, Sawyer MG, Searle AK, Robinson PJ. The health-related quality of life of children and adolescents in home-based foster care. Quality of Life Research 2007;16(7):1157-1166.
  79. Carvalho MF, Bloch KV, Oliveira SK. Quality of life of children and adolescents with rheumatic fever. J Pediatr (Rio J). 2009 Sep-Oct;85(5):438-42. English, Portuguese.
  80. Céspedes-Cruz A, Gutiérrez-Suárez R, Pistorio A, Ravelli A, Loy A, Murray KJ, Gerloni V, Wulffraat N, Oliveira S, Walsh J, Penades IC, Alpigiani MG, Lahdenne P, Saad-Magalhães C, Cortis E, Lepore L, Kimura Y, Wouters C, Martini A, Ruperto N; Pediatric Rheumatology International Trials Organization (PRINTO). Methotrexate improves the health-related quality of life of children with juvenile idiopathic arthritis. Ann Rheum Dis. 2008 Mar;67(3):309-14.
  81. Cheng JY, Chen RY, Ko JS, Ng EM. Efficacy and safety of atomoxetine for attention-deficit/hyperactivity disorder in children and adolescents-meta-analysis and meta-regression analysis. Psychopharmacology (Berl), 2007;194(2): 197-209.
  82. Chiou SS, Jang RC, Liao YM, Yang P. Health-related quality of life and cognitive outcomes among child and adolescent survivors of leukemia. Support Care Cancer. 2010 Dec;18(12):1581-7. Epub 2009 Dec 1.
  83. Chmielik LP, Mielnik-Niedzielska G, Kasprzyk A, Stankiewicz T, Niedzielski A. Physical and Psychosocial Concept Domains Related to Health-Related Quality of Life (HRQL) in 50 Girls and 52 Boys Between 5 and 18 Years Old in Poland Using the Parent-Reported 50-Item Child Health Questionnaire (CHQ-PF50). 18 May 2022. Med Sci Monit In Press; DOI: 10.12659/MSM.936801
  84. Choe J., Soo J.I., Vitale M.G., Spellman M.E., & Roye D.P.Perspectives on pediatric outcomes: a comparison of parents' and patients' rating of quality of life following orthopaedic intervention. Quality of Life Research 2001;10(3):218 (abstract #103).
  85. Chow AJ, Iverson R, Lamoureux M, Tingley K, Jordan I, Pallone N, Smith M, Al-Baldawi Z, Chakraborty P, Brehaut J, Chan A, Cohen E, Dyack S, Gillis LJ, Goobie S, Graham ID, Greenberg CR, Grimshaw JM, Hayeems RZ, Jain-Ghai S, Jolly A, Khangura S, MacKenzie JJ, Major N, Mitchell JJ, Nicholls SG, Pender A, Potter M, Prasad C, Prosser LA, Schulze A, Siriwardena K, Sparkes R, Speechley K, Stockler S, Taljaard M, Teitelbaum M, Trakadis Y, van Karnebeek C, Walia JS, Wilson BJ, Wilson K, Potter BK. Families' healthcare experiences for children with inherited metabolic diseases: protocol for a mixed methods cohort study. BMJ Open. 2022 Feb 22;12(2):e055664. doi: 10.1136/bmjopen-2021-055664. PMID: 35193919.
  86. Cole CR, Bucuvalas JC, Hornung RW, Krug S, Ryckman FC, Atherton H, Alonso MP, Balistreri WF, Kotagal U. Impact of liver transplantation on HRQOL in children less than 5 years old. Pediatr Transplant. 2004 Jun;8(3):222-7.
  87. Collin SM, Nuevo R, van de Putte EM, Nijhof SL, Crawley E. Chronic fatigue syndrome (CFS) or myalgic encephalomyelitis (ME) is different in children compared to in adults: a study of UK and Dutch clinical cohorts. BMJ Open. 2015 Oct 28;5(10):e008830. doi: 10.1136/bmjopen-2015-008830.
  88. Collins MT, Kushner H, Reynolds JC, Chebli C, Kelly MH, Guota A, Briliante B, Leet AI, Riminucci M, Robey PG, Bianco P, Weintroub S, Chen CC. An instrument to measure skeletal burden and predict functional outcome in fibrous dysplasia of bone. J Bone Miner Res, 2005;20(2): 219-26.
  89. Costello JM, O'Brien M, Wypij D, Shubert J, Salvin JW, Newburger JW, Laussen PC, Arnold JH, Fynn-Thompson F, Thiagarajan RR. Quality of life of pediatric cardiac patients who previously required extracorporeal membrane oxygenation. Pediatr Crit Care Med. 2012 Jul;13(4):428-34. doi: 10.1097/PCC.0b013e318238ba21. PMID: 22067987
  90. Crouch SR, Waters E, McNair R, Power J, Davis E.ACHESS--The Australian study of child health in same-sex families: background research, design and methodology. BMC Public Health. 2012 Aug 13;12:646. doi: 10.1186/1471-2458-12-646. MID: 22888859 [PubMed - indexed for MEDLINE]
  91. Crouch SR1, Waters E, McNair R, Power J. The health perspectives of Australian adolescents from same-sex parent families: a mixed methods study. Child Care Health Dev. 2014 Jul 31. doi: 10.1111/cch.12180. [Epub ahead of print]
  92. Culbert EL, Ashburn DA, Cullen-Dean G, Joseph JA, Williams WG. Blackstone EH, McCrindle BW and the Congenital Heart Surgeons Society. Quality of life in children after repair of transposition of the great arteries. Circulation 2003; 108(7):857-62.
  93. Cunnighman C, Drotar D, Palermo T, McGowan K, Arendt R. Health-related quality of life in children and adolescents with inflammatory bowel disease. Children's Healthcare 2007 36(1):29-43.
  94. Cunningham JM, Chiu EJ, Landgraf JM, & Glicklich RE. The health impact of chronic recurrent rhinosinusitis in children. Archives of Otolaryngology-Head & Neck Surgery 2000;126(11):1363-8.
  95. DA Silva KR, Costa R, DE Oliveira RM Jr, Lacerda MS, Un Huang AI, Rossi MB, Crevelari ES, Tamaki WT, Filho MM, Pietrobon R. Quality of Life and Functional Capacity after Long-Term Right Ventricular Pacing in Pediatrics and Young Adults with Congenital Atrioventricular Block. Pacing Clin Electrophysiol. 2013 Dec;36(12):1539-49. doi: 10.1111/pace.12258. Epub 2013 Oct 7. PMID: 24117856 [PubMed - in process]
  96. Daltroy L.H., Liang M.H., Fossel A.H., Goldberg M.J., & The Pediatric Outcomes Instrument Development Group. The POSNA Pediatric Musculoskeletal Functional Health Questionnaire: report on reliability, validity, and sensitivity to change. Journal of Pediatric Orthopedics 1998;18:561-571.
  97. Danckaerts M, Sonuga-Barke EJ, Banaschewski T, Buitelaar J, Döpfner M, Hollis C, Santosh P, Rothenberger A, Sergeant J, Steinhausen HC, Taylor E, Zuddas A, Coghill D. The quality of life of children with attention deficit/hyperactivity disorder: a systematic review. Eur Child Adolesc Psychiatry. 2010 Feb;19(2):83-105. Epub 2009 Jul 26.
  98. Danielsson AJ, Bartonek A, Levey E, McHale K, Sponseller P, Saraste H. Associations between orthopaedic findings, ambulation and health-related quality of life in children with myelomeningocele. J Child Orthop. 2008 Feb;2(1):45-54. Epub 2007 Dec 15. DOI 10.1007/s11832-007-0069-6. PMID: 19308602 [PubMed - in process]
  99. Darcy JM1, Grzywacz JG, Stephens RL, Leng I, Clinch CR, Arcury TA. Maternal depressive symptomatology: 16-month follow-up of infant and maternal health-related quality of life. J Am Board Fam Med. 2011 May-Jun;24(3):249-57. doi: 10.3122/jabfm.2011.03.100201.
  100. Davey TM, Aitken LM, Kassulke D, Bellamy N, Ambrose J, Gee T, Clark M. Long-term outcomes of seriously injured children: a study using the Child Health Questionnaire. J Paediatr Child Health, 2005;41(5-6): 278-83.
  101. Davis E, Davies B, Wolfe R, Raadsveld R, Heine B, Thomason P, Dobson F, Graham HK. A randomized controlled trial of the impact of therapeutic horse riding on the quality of life, health, and function of children with cerebral palsy. Dev Med Child Neurol. 2009 Feb;51(2):111-9; discussion 88.
  102. Davis E, Shelly A, Waters E, Davern M. Measuring the quality of life of children with cerebral palsy: comparing the conceptual differences and psychometric properties of three instruments. Dev Med Child Neurol. 2010 Feb;52(2):174-80. Epub 2009 Jun 22.
  103. de beer M, Hofsteenge GH, Koot HM, Hirasing RA, Delemarre-van de Waal HA, Gemke RJ. Health-related-quality-of-life in obese adolescents is decreased and inversely related to BMI. Acta Paediatr;2007:96(5):710-4.
  104. De Inocencio J, García-Consuegra J, Merino R, Calvo I, García JJ, Ruperto N, for the Paediatric Rheumatology International Trials Organization (PRINTO). The European Spanish version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S141-S145.
  105. de la Loge C, Hunter SJ, Schiemann J, Yang H. Assessment of behavioral and emotional functioning using standardized instruments in children and adolescents with partial-onset seizures treated with adjunctive levetiracetam in a randomized, placebo-controlled trial. Epilepsy Behav. 2010 Jul;18(3):291-8. Epub 2010 May 23.
  106. de Sonneville-Koedoot C1, Stolk EA2, Raat H3, Bouwmans-Frijters C2, Franken MC4. Health-related quality of life of preschool children who stutter. J Fluency Disord. 2014 Dec;42:1-12. doi: 10.1016/j.jfludis.2014.09.001. Epub 2014 Oct 17
  107. de Vries MA, van Litsenburg RR, Huisman J, Grootenhuis MA, Versluys BA, Kaspers GJ, Gemke RJ. Effect of dexamethasone on quality of life in children with acute lymphoblastic leukaemia: a prospective observational study. Health Qual Life Outcomes. 2008 Nov 26;6(1):103. [Epub ahead of print]
  108. de Wee EM1, Fijnvandraat K, de Goede-Bolder A, Mauser-Bunschoten EP, Eikenboom JC, Brons PP, Smiers FJ, Tamminga R, Oostenbrink R, Raat H, van der Bom JG, Leebeek FW; WiN Study Group. Impact of von Willebrand disease on health-related quality of life in a pediatric population. J Thromb Haemost. 2011 Mar;9(3):502-9. doi: 10.1111/j.1538-7836.2010.04175.x.
  109. de Wit M, de Waal HA, Alle Bokma J, Hassnoot K, Houdijk MC, Gemke RJ, Snoek FJ. Monitoring and discussing health related quality of life in adolescents with type 1 diabetes improves psychosocial well-being. A randomized controlled trial. Diabetes Care 2008. Aug;31(8):1521-6. epub PMID: 18509204
  110. de Wit M, Delemarre-van de Waal HA, Bokma JA, Haasnoot K, Houdijk MC, Gemke RJ, Snoek FJ. Follow-up results on monitoring and discussing health-related quality of life in adolescent diabetes care: benefits do not sustain in routine practice. Pediatr Diabetes. 2010 May;11(3):175-81. Epub 2009 Jun 16.
  111. de Wit M, Delemarre-van de Waal HA, Bokma JA, Haasnoot K, Houdijk MC, Gemke RJ, Snoek FJ. Self-report and parent-report of physical and psychosocial well-being in Dutch adolescents with type 1 diabetes in relation to glycemic control. Health Qual Life Outcomes, 2007. 16;5:10.
  112. de Wit M, Delemarre-van de Waal HA, Pouwer F, Gemke RJ, Snoek FJ. Monitoring health related quality of life in adolescents with diabetes: a review of measures. Arch Dis Child. 2007 May;92(5):434-9.
  113. de Wit M, Pouwer F, Gemke RJ, Delemarre-van de Waal HA, Snoek FJ. Validation of the WHO-5 Well-Being Index in adolescents with type 1 diabetes. Diabetes Care 2007;30(8):2003-6.
  114. Dean BB, Calimlim BC, Sacco P, Aguilar D, Maykut R, Tinkelman D. Uncontrolled asthma: assessing quality of life and productivity of children and their caregivers using a cross-sectional Internet-based survey. Health Qual Life Outcomes. 2010 Sep 8;8:96.
  115. Dehghani-Arani F,esharat MA, Fitton VA, Aghamohammadi A. Efficacy of an Attachment-Based Intervention Model on Health Indices in Children with Chronic Disease and Their Mothers. Adm Policy Ment Health. 2018 Nov;45(6):900-910. doi: 10.1007/s10488-018-0873-y.
  116. Deighton J, Croudace T, Fonagy P, Brown J , Patalay P and Wolpert M. Measuring mental health and wellbeing outcomes for children and adolescents to inform practice and policy: a review of child self-report measuresChild and Adolescent Psychiatry and Mental Health · April 2014. DOI: 10.1186/1753-2000-8-14.
  117. DeMaso DR, Lauretti A, Spieth L, van der Feen JR, Jay KS, Gauvreau K, Walsh EP, Berul CI. Psychosocial factors and quality of life in children and adolescents with implantable cardioverter-defibrillators. Am J Cardiol, 2004; 93(5):582-7.
  118. Dematteo CA, Hanna SE, Yousefi-Nooraie R, Lin CY, Mahoney WJ, Law MC, McCauley D. Quality-of-life after brain injury in childhood: Time, not severity, is the significant factor. Brain Inj. 2014;28(1):114-21. doi: 10.3109/02699052.2013.848380.
  119. Demirkiran HG1, Kinikli GI, Olgun ZD, Kamaci S, Yavuz Y, Vitale MG, Yazici M. Reliability and Validity of the Adapted Turkish Version of the Early-onset Scoliosis-24-Item Questionnaire (EOSQ-24). J Pediatr Orthop. 2015 Mar 12. [Epub ahead of print]
  120. den Boer SL, Baart SJ, van der Meulen MH, van Iperen GG, Backx AP, Ten Harkel AD, Rammeloo LA, du Marchie Sarvaas GJ, Tanke RB, Helbing WA, Utens EM, Dalinghaus M. Parent reports of health-related quality of life and heart failure severity score independently predict outcome in children with dilated cardiomyopathy. Cardiol Young. 2017 Aug;27(6):1194-1202. doi: 10.1017/S1047951116002833. Epub 2017 Mar 14.
  121. Deutz U, Heussen N, Weigt-Usinger K, Leiz S, Raabe C, Polster T, Daniela S, Moll C, Lücke T, Krägeloh-Mann I, Hollmann H, Häusler M.Impact of Hippotherapy on Gross Motor Function and Quality of Life in Children with Bilateral Cerebral Palsy: A Randomized Open-Label Crossover Study. Neuropediatrics. 2018 Jun;49(3):185-192. doi: 10.1055/s-0038-1635121. Epub 2018 Feb 27.
  122. DeVeaugh-Geiss J., Conners C.K., Sarkis E.H., Winner P.K., Ginsberg L.D., Hemphill J.M., Laurenza A., Barrows C.E., Webster C.J., Stotka C.J., & Asgharnejad M. GW320659 for the treatment of Attention-Deficit/Hyperactivity Disorder in Children. Journal of the American Acadamy of Child and Adolescent Psychiatry 2002; 41(8):914-920.
  123. Devine KA, Reed-Knight B, Simons LE, Mee LL, Blount RL. Prospective comparison of parent and adolescent report of health-related quality of life in adolescent solid organ transplant recipients. Pediatr Transplant. 2010 Dec;14(8):1000-6. doi: 10.1111/j.1399-3046.2010.01392.x. Epub 2010 Sep 15
  124. Di Battista A, Soo C, Catroppa C, Anderson V. Quality of life in children and adolescents post-TBI: a systematic review and meta-analysis. J Neurotrauma. 2012 Jun 10;29(9):1717-27. doi: 10.1089/neu.2011.2157. Epub 2012 May 15.
  125. do Monte FA, Ferreira MN, Petribu KC, Almeida NC, Gomes JB, Mariano MH, Mesquita ZB, Simões DM, Rodrigues AF, Souza MA. Validation of the Brazilian version of the pediatric outcomes data collection instrument: a cross-sectional evaluation in children and adolescents with juvenile idiopathic arthritis. BMC Pediatr. 2013 Oct 30;13(1):177. [Epub ahead of print]. PMID: 24171906
  126. Dodson JL, Furth SL, Yenokyan G, Alcorn K, Diener-West M, Wu AW, and Gearhart JP. Parent Perspectives of Health Related Quality of Life for Adolescents With Bladder Exstrophy-Epispadias as Measured by the Child Health Questionnaire-Parent Form 50. J Urol. 2010 October; 184(4 Suppl): 1656–1661. Published online 2010 August 21. doi: 10.1016/j.juro.2010.03.122
  127. Doležalová P, Ruperto N, Nemcová D, Blichová M, Hoza J, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Czech version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S45-S49.
  128. Drotar D, Schwartz L, Palermo TM, Burant C. Factor structure of the child health questionnaire-parent form in pediatric populations. J Pediatr Psychol,2006:31(2):127-38.
  129. Duarte C, Ruperto N, Goycochea MV, Maldonado R, Beristein R, De Inocencio J, Burgos-Vargas R, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Mexican version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S106-S110.
  130. Duffy CM. Measurement of health status, functional status, and quality of life in children with juvenile idiopathic arthritis: clinical science for the pediatrician. Rheum Dis Clin North Am 2007;33(3):389-402.
  131. Dunbar-Masterson C., Wypij D., Bellinger D.C., Rappaport L.A., Baker A.L., Jonas R.A., & Newburger J.W. General health status of children with D-Transposition of the great arteries after the arterial switch operation. Circulation 2001;104(suppl 1):138-142.
  132. DunnGalvin A, de BlokFlokstra BM, Burks AW, Dubois AE, Hourihane JO. Food allergy QOL questionare for children aged 0-12 years: content, construct, and cross-cultural validity. Clin Exp Allergy 2008;38(6):977-86. Epub. PMID:18435800.
  133. Easton JA, Landgraf JM, Casamassimo PS, Wilson S, Ganzberg S. Evaluation of a generic quality of life instrument for early childhood caries-related pain. Community Dent Oral Epidemiol,2008 Oct;36(5):434-40. Epub 2008 Apr 21.
  134. Edmunds S, Garratt A, Haines L, Blair M. Child Health Assessment at School Entry (CHASE) project: evaluation in 10 London primary schools. Child Care Health Dev, 2005;31(2):143-54.
  135. Edwards L, Watson M, St. James-Roberts I, Ashley S, Tinley C, Brougham B, Osborn T, Baldus C, Romer G. Adolescent's stress responses and psychological functioning when a parent has early breast cancer. Psychooncology 2008 Oct;17(10):1039-47.
  136. Edwards S, Hyman PE, Mousa H, Bruce A. Cocjin J, Kelsey D, Fleming K, Romine RS and Davis AM. iKanEat: protocol for a randomized controlled trial of megestrol as a component of a pediatric tube weaning protocol. Trials. 2021 Feb 27;22(1):169. doi: 10.1186/s13063-021-05131-w.
  137. Edwards, S., Hyman, P.E., Mousa, H. et al. iKanEat: protocol for a randomized controlled trial of megestrol as a component of a pediatric tube weaning protocol. Trials 22, 169 (2021). https://doi.org/10.1186/s13063-021-05131-w
  138. Eiser C. & Morse R. Quality-of-life measures in chronic diseases of childhood. Health Technology Assessment 2001;5(4).
  139. Ekert H., Brewin T., Boey W., Davey P., & Tilden D. Cost-utility analysis of recombinant factor VIIa (NovoSeven) in six children with long-standing inhibitors to factor VIII or IX. Haemophilia 2001;7(3):279-285.
  140. Elbasan B, Duzgun I, Oskay D. Is There any Difference in Health Related Quality of Life, Self Care and Social Function in Children with Different Disabilities Living in Turkey? Iran J Pediatr. 2013 Jun;23(3):281-8.
  141. Elisofon SA, Emerick KM, Sinacore JM, Alonso EM. Health status of patients with Alagille syndrome. J Pediatr Gastroenterol Nutr. 2010 Dec;51(6):759-65.
  142. Engelen V, Koopman HM, Detmar SB, Raat H, van de Wetering MD, Brons P, Anninga JK, Abbink F, Grootenhuis MA. Health-related quality of life after completion of successful treatment for childhood cancer. Pediatr Blood Cancer. 2011 Apr;56(4):646-53. doi: 10.1002/pbc.22795. Epub 2010 Dec 22.
  143. Epker JV, Maddrey AM. Quality of life in pediatric patients with cystic fibrosis. International Journal of Rehabilitation and Health 1998;4(4):215-222.
  144. Escobar R, Hervas A, Soutullo C, Mardomingo M, Uruauela A, Gilaberte 1. Attention deficit/hyperactivity disorder: burden of the disease according to subtypes in recently diagnosed children. Actas Esp Psiquiatr, 2008;36(5):285-94. Epub. PMID:18307061.
  145. Escobar R, Soutullo C, San Sebastian J, Fernandez E, Julian I, Lahortiga F. Atomoxetine safety and efficacy in children with attention deficit/hyperactivity disorder (ADHD): initial phase of 10-week treatment in a relapse prevention study with a Spanish sample. Actas Esp Psiquiatr 2005;33(1):26-32.
  146. Escobar R, Soutullo CA, Hervas A, Gastaminza X, Polavieja P, Gilaberte I. Worse quality of life for children with newly diagnosed attention-deficit/hyperactivity disorder, compared with asthmatic and healthy children. Pediatrics 2005;116(3): e364-9.
  147. Eva Sandstedt, Anders Fasth, Meta Nyström Eek, Eva Beckung. Muscle strength, physical fitness and well-being in children and adolescents with juvenile idiopathic arthritis and the effect of an exercise programme: a randomized controlled trial. Pediatr Rheumatol Online J. 2013; 11: 7. Published online 2013 February 22. doi: 10.1186/1546-0096-11-7
  148. Fadrowski J, Cole SR, Hwang W, Fiorenza J, Weiss RA, Gerson A, Furth SL. Changes in physical and psychosocial functioning among adolescents with chronic kidney disease. Pediatr Nephrol, 2006;21(3):394-9.
  149. Faleiros FT, Machado NC. Assessment of health-related quality of life in children with functional defecation disorders. J Pediatr (Rio J), 2006;82(6):421-5.
  150. Fasth A, Nystrom J. Quality of Life and Health-Care Resource Utilization Among Children with Primary Immunodeficiency Receiving Home Treatment with Subcutaneous Human Immunoglobulin. J Clin Immunol. 2008 Feb 7. [Epub ahead of print] PMID: 18256911
  151. Fasth A, Nystrom J. Safety and efficacy of subcutaneous human immunoglobulin in children with primary immunodeficiency. Acta Paediatr. 2007 Oct;96(10):1474-8.
  152. Ferro MA, Landgraf JM, Speechley KN. Factor structure of the Child Health Questionnaire Parent Form-50 and predictors of health-related quality of life in children with epilepsy. Qual Life Res 2013 23 January e-pub ahead of print DOI 10.1007/s11136-013-0351-7.
  153. Finkel JC, Finley A, Greco A, Weisman SJ, Zeltzer L. Transdermal fentanyl in the management of children with chronic severe pain: results from an international study. Cancer, 2005;104(12): 2847-57.
  154. Flanary VA. Long-term effect of adenotonsillectomy on quality of life in pediatric patients. Laryngoscope 2003;113(10):1639-44.
  155. Flink IJ, Beirens TM, Looman C, Landgraf JM, Tiemeier H, Mol HA, Jaddoe VW, Hofman A, Mackenbach JP, Raat H. Health-related quality of life of infants from ethnic minority groups: the Generation R Study. Qual Life Res. 2013 Apr;22(3):653-64. doi: 10.1007/s11136-012-0184-9. Epub 2012 May 10.
  156. Flokstra-de Blok BM, Dubois AE, Vlieg-Boerstra BJ, Oude Elberink JN, Raat H, DunnGlavin A, Hourihane JO, Duiverman EJ. Health-related quality of life of food allergic patients: comparison with the general population and other diseases. Allergy. 2010 Feb;65(2):238-44. Epub 2009 Oct 1.
  157. Flokstra-de Blok BM, DunnGalvin A, Vlieg-Boerstra BJ, Oude Elberink JN, Duiverman EJ, Hourihane JO, Dubois AE. Development and validation of a self-administered Food Allergy Quality of Life Questionnaire for children. Clin Exp Allergy. 2009 Jan;39(1):127-37. Epub 2008 Oct 30.
  158. Flokstra-de Blok BM, DunnGalvin A, Vlieg-Boerstra BJ, Oude Elberink JN, Duiverman EJ, Hourihane JO, Dubois AE. Development and validation of the self-administered Food Allergy Quality of Life Questionnaire for adolescents. J Allergy Clin Immunol,2008;122(1):139-44, 144.e1-2.
  159. Flokstra-de Blok BM, van der Velde JL, Vlieg-Boerstra BJ, Oude Elberink JN, DunnGlavin A, Hourihane JO, Duiverman EJ, Dubois AE. Health-related quality of life of food allergic patients measured with generic and disease-specific questionnaires. Allergy. 2010 Aug;65(8):1031-8. Epub 2010 Feb 1.
  160. Foeldvari I, Ruperto N, Dressler F, Häfner R, Küster RM, Michels H, Minden K, Schauer-Peterowskaja C, Bullinger M, Landgraf JM, Huppertz HI, for the Paediatric Rheumatology International Trials Organization (PRINTO). The German version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S71-S75.
  161. Fraisse A, Jais X, Schleich JM, di Filippo S, Maragnès P, Beghetti M, Gressin V, Voisin M, Dauphin C, Clerson P, Godart F, Bonnet D. Characteristics and prospective 2-year follow-up of children with pulmonary arterial hypertension in France. Arch Cardiovasc Dis. 2010 Feb;103(2):66-74. doi: 10.1016/j.acvd.2009.12.001. Epub 2010 Feb 11.
  162. Frazier TW, Weiss M, Hodgkins P, Manos MJ, and Landgraf JM. Time Course and Predictors of Health-Related Quality of Life Improvement and Medication Satisfaction in Children Diagnosed with Attention-Deficit/Hyperactivity Disorder Treated with the Methylphenidate Transdermal System. Journal of Child and Adolescent Psychopharmacology 2010;20(5): 355–364.
  163. Friedlander SL, Larkin EK, Rosen CL, Palermo TM, Redline S. Decreased Quality of Life Associated With Obesity in School-aged Children. Archives of Pediatric Adolescent Medicine 2003;157:1206-1211.
  164. Frøisland DH, Markestad T, Wentzel-Larsen T, Skrivarhaug T, Dahl-Jørgensen K, Graue M. Reliability and validity of the Norwegian child and parent versions of the DISABKIDS Chronic Generic Module (DCGM-37) and Diabetes-Specific Module (DSM-10). Health Qual Life Outcomes. 2012 Feb 2;10:19.
  165. Frøisland DH, Markestad T, Wentzel-Larsen T, Skrivarhaug T, Dahl-Jørgensen K, Graue M. Reliability and validity of the Norwegian child and parent versions of the DISABKIDS Chronic Generic Module (DCGM-37) and Diabetes-Specific Module (DSM-10). Health Qual Life Outcomes. 2012 Feb 2;10:19.
  166. Fuchs CE, Van Geelen SM, Hermans HJ, Van De Putte EM, Van Geel R, Sinnema G, Kuis W. Psychological intervention for adolescents with juvenile idiopathic arthritis: for whom and when? J Rheumatol. 2013 Apr;40(4):528-34. doi: 10.3899/jrheum.120741. Epub 2013 Feb 15.
  167. Fuchs CE, van Geelen SM, van Geel R, Sinnema G, van de Putte EM, Hermans HJ, Kuis W. Health and identity: Self-positioning in adolescent chronic fatigue syndrome and juvenile idiopathic arthritis. Clin Child Psychol Psychiatry. 2013 Jul;18(3):383-97. doi: 10.1177/1359104512455814. Epub 2012 Oct 11.
  168. Fung EB, Samosn-Fang L, Stallings VA, Conoway M, Liptak G, Henderson RC et. al. Feeding dysfunction is associated with poor growth and health status in children with cerebral palsy. J A Diabetic Assoc. 2002;102(3):361-373.
  169. Gabbe BJ, Simpson PM, Sutherland AM, Palmer CS, Williamson OD, Butt W, Bevan C, Cameron PA. Functional and health-related quality of life outcomes after pediatric trauma. J Trauma. 2011 Jun;70(6):1532-8.
  170. Gardulf A, Borte M, Ochs HD, Nicolay U. Prognostic factors for health-related quality of life in adults and children with primary antibody deficiencies receiving SCIG home therapy. Clin Immunol, 2008;126(1): 81-8.
  171. Gardulf A, Nicolay U, Asensio O, Bernatowska E, Bock A, Costa-Carvalho B, Granert C, Haag S, Hernandez D, Kiessling P, Kus J, Matamoros N, Niehues T, Schmidt S, Schulze I, Borte M. Children and adults with primary antibody deficiencies gain quality of life by subcutaneous IgG self-infusions at home. J Allergy Clin Immunol 2004;114:936-42.
  172. Geltman PL, Grant Knight W, Mehta SD, Lloyd-Travaglini C, Lustig S, Landgraf JM, and Wise PH. The “Lost Boys” of Sudan: Functional and Behavioral Health of Unaccompanied Refugee Minors Resettled in the United States” Arch. of Pediatr. Adolesc. Med 2005;159(6):585-91.
  173. Geltman PL, Grant-Knight W, Ellis H, Landgraf JM. The "Lost Boys" of Sudan: Use of health services and functional health outcomes of unaccompanied refugee minors resettled in the U.S. J Immigrant Health. 2008; 10(5): 389-396. Published Online: 10: DOI 10.1007/s10903-007-9110-6.
  174. Georgalas C, Tolley N, Kanagalingam, J. Measuring quality of life in children with adenotonsillar disease with the Child Health Questionnaire: A First U.K. study. Laryngoscope 2004;114:1849.
  175. Georgalas, C., Babar-Craig, H., Arora, A., & Narula, A. Health outcome measurements in children with sleep disordered breathing. Clin Oto 2007;32:268-274.
  176. Gerson A, Hwang W, Fiorenza J, Barth K, Kaskel F, Weiss L, Zelikovsky N, Fivush B, Furth S. Anemia and health-related quality of life in adolescents With Chronic Kidney Disease. American Journal of Kidney Diseases 2004;44(6):1017-1023.
  177. Gerson A.C., Furth S.L., Neu A.M., & Fivush B.A. Assessing associations between medication adherence and potentially modifiable psychosocial variables in pediatric kidney transplant recipients and their families. Pediatric Transplantation 2004;(8):543-550.
  178. Gerson, AC, Armstead N, Neu AM, Goldstein S, Furth SL, Fivush BA. Health-related quality of life (HRQOL) of children with End-stage Renal Disease (ESRD) on Dialysis. Presentation at the Annual Meeting of the Pediatric Academic Society, Toronto Canada, 5-7 May 2007.
  179. Gibbons C, Weiss MD, Goodman DW, Landgraf JM. ADHD-hyperactive/impulsive subtype in adults. Mental Illness 2010;2:e9:41-5.
  180. Gilliam F, Wyllie E, Kashden J, Faught E, Kotagal P, Bebin M, Wise M, Comair Y, Morawetz R, Kuzniecky R. Epilepsy surgery outcome: comprehensive assessment in children. Neurology 1997;48(5):1368-1374.
  181. Ginsberg JP, Cnaan A, Zhao H, Clark BJ, Paridon SM, Chin AJ, Rychik J, Hogarty AN, Barber G, Rutkowski M, Kimball TR, DeLaat C, Steinherz LJ, Silber JH. Using health-related quality of life measures to predict cardiac function in survivors exposed to anthracyclines. J Clin Oncol 2004;22(15):3149-55.
  182. Glattes RC, Burton DC, Lai SM, Frasier E, Asher MA. The reliability and concurrent validity of the Scoliosis Research Society-22r patient questionnaire compared to the Child Health Questionnaire-CF87 patient questionnaire for adolescent spinal deformity. Spine,2007;32(16):1778-84.
  183. Goldstein NA, Stewart MG, Witsell DL, Hannley MT, Weaver EM, Yueh B, Smith TL, Orvidas LJ. Quality of life after tonsillectomy in children with recurrent tonsillitis. Otolaryngol Head Neck Surg,2008;138(1 Suppl): S9-S16.
  184. Goodwin SW, Lambrinos AI, Ferro MA Sabaz M, Speechley KN. Development and assessment of a shortened Quality of Life in Childhood Epilepsy Questionnaire (QOLCE-55). Epilepsia. 2015 Jun;56(6):864-72. doi: 10.1111/epi.13000. Epub 2015 Apr 25.
  185. Gorelick MH, Scribano PV, Steven MW, Schultz TR. Construct validity and responsiveness of the Child Health Questionnaire in children with acute asthma. Annals of Allergy, Asthma & Immunology 2003;90:622-628.
  186. Graetz BW, Sawyer MG, Hazell PL, Arney F, Baghurst P. Validity of DSM-IVADHD subtypes in a nationally representative sample of Australian children and adolescents. J Am Acad Child Adolesc Psychiatry. 2001 Dec;40(12):1410-7.
  187. Graue M, Wentzel-Larsen T, Hanestad BR, Batsvik B, Sovik O. Measuring self-reported, health-related, quality of life in adolescents with type 1 diabetes using both generic and disease-specific instruments. Acta Paediatr,2003;92(10):1190-6.
  188. Graue M, Wentzel-Larsen T, Hanestad BR, Sovik O. Evaluation of a programme of group visits and computer-assisted consultations in the treatment of adolescents with Type 1 diabetes. Diabet Med,2005;22(11):1522-9.
  189. Gray K1, Burns J, Little D, Bellemore M, Gibbons P. Is tibialis anterior tendon transfer effective for recurrent clubfoot? Clin Orthop Relat Res. 2014 Feb;472(2):750-8. doi: 10.1007/s11999-013-3287-x. Epub 2013 Sep 24.
  190. Gray PH, O'Callaghan MJ, Poulsen L. Behaviour and quality of life at school age of children who had bronchopulmonary dysplasia. Early Hum Dev, 2008;84(1): 1-8.
  191. Greenley RN, Hommel KA, Nebel J, Raboin T, Li SH, Simpson P, Mackner L. A meta-analytic review of the psychosocial adjustment of youth with inflammatory bowel disease. J Pediatr Psychol. 2010 Sep;35(8):857-69. doi: 10.1093/jpepsy/jsp120. Epub 2010 Feb 1. PMID: 20123705 [PubMed - indexed for MEDLINE] PMCID: PMC3107587
  192. Gritti A, Pisano S, Salvati T, Di Cosmo N, Iorio R, Vajro P. Health-related quality of life in pediatric liver transplanted patients compared with a chronic liver disease group. Ital J Pediatr. 2013 Sep 11;39:55. doi: 10.1186/1824-7288-39-55. PMID: 24025419
  193. Groen W, van der Net J, Lacatusu AM, Serban M, Helders PJ, Fischer K. Functional limitations in Romanian children with haemophilia: further testing of psychometric properties of the Paediatric Haemophilia Activities List. Haemophilia. 2013 May;19(3):e116-25. doi: 10.1111/hae.12090. Epub 2013 Feb 4.
  194. Groen WG, van der Net J, Helders PJ, Fischer K. Development and preliminary testing of a Paediatric Version of the Haemophilia Activities List (pedhal). Haemophilia. 2010 Mar;16(2):281-9. doi: 10.1111/j.1365-2516.2009.02136.x. Epub 2009 Nov 11.
  195. Guitiérez-Suárez R, Pistorio A, Cespedes Cruz A, Norambueba X, Flato B, Rumba I, Haracek M, Nieleen S, Susic G, Mihaylova D. Humer C, Melo-Gomez, Andersson-Gare, B, Balogh Z, De Cunto C, Vesely R, Pagava K, Romicka AM, Burgos-Vargas, R, Martini A, Ruperto N. Health-related quality of life of patients with juvenile idiopathic arthritis coming from 3 different geographic areas. The PRINTO multinational quality of life cohort study. Rheumatology (Oxford), 2007;46(2):314-20.
  196. Guo VY, Yu EYT, Wong RSM, Ip P, Tiwari AFY, Wong CKH, Fung CSC, Wong WHS, Lam CLK. Maternal mental quality of life mediates the associations between intimate partner abuse against mothers and their children's behaviours and quality of life in low-income Chinese families. Qual Life Res. 2017 Jul 24. doi: 10.1007/s11136-017-1664-8. [Epub ahead of print]
  197. Guo VYW, Wong CKH, Wong RSM, Yu EYT, Ip P, Lam CLK. Spillover Effects of Maternal Chronic Disease on Children's Quality of Life and Behaviors Among Low-Income Families. Patient. 2018 Dec;11(6):625-635. doi: 10.1007/s40271-018-0314-8.
  198. Gäre Andersson B, Ruperto N, Berg S, Hagelberg S, Jonsson NO, Magnusson B, Martinell J, Erling A, Landgraf JM, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Swedish version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S146-S150.
  199. Hack M. Consideration of the use of health status, functional outcome, and quality-of-life to monitor neonatal intensive care practice. Pediatrics 1999;103(1 Suppl E):319-28.
  200. Hafkamp-de Groen E, Mohangoo AD, Landgraf JM, de Jongste JC, Duijts L, Moll HA, Jaddoe VW, Hofman A, Raat H. the impact of preschool wheezing patterns on health-related quality of life at age 4 years. Eur Respir J. 2013 Apr;41(4):952-959. doi: 10.1183/09031936.00015712. Epub 2012 Jul 12. ahead of print PMID: 22790911.
  201. Hakkaart-van Roijen L, Zwirs BM, Bouwmans C, Tan SS, Sculpen TW, Vlasveld L, Buitelaar JK. Societal costs and quality of life of children suffering from attention deficient hyperactivity disorder (ADHD). Eur Child Adolesc Psychiatry,2007;16(5):316-26.
  202. Hamiwka L, Singh N, Niosi J, Wirrell E. Perceived health in children presenting with a "first seizure". Epilepsy Behav. 2008 Oct;13(3):485-8. doi: 10.1016/j.yebeh.2008.05.019. Epub 2008 Jul 9. PMID: 18617444
  203. Harjacek M, Ruperto N, Ostojic J, Bukovac LT, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Croatian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S40-S44.
  204. Hart CN, Palermo TM, Rosen CL. Health-related quality of life among children presenting to a pediatric sleep disorders clinic. Behav Sleep Med,2005;3(1):4-17.
  205. Harvey A, Robin J, Morris ME, Graham HK, Baker R. A systematic review of measures of activity limitation for children with cerebral palsy. Dev Med Child Neurol 2008;50(3):190-8.
  206. Hashkes P, Uziel Y, Press J, Brik R, Navon-Elkan P, Mukamel M, Libman E, Tauber T, Ruperto N, Barash J, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Hebrew version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S86-S90.
  207. Hashkes PJ1, Spalding SJ2, Hajj-Ali R2, Giannini EH3, Johnson A3, Barron KS4, Weisman MH5, Pashinian N5, Reiff AO6, Samuels J7, Wright D8, Lovell DJ3, Huang B3. The effect of rilonacept versus placebo on health-related quality of life in patients with poorly controlled familial Mediterranean fever. Biomed Res Int. 2014;2014:854842. doi: 10.1155/2014/854842. Epub 2014 May 15.
  208. Hawes K, McGowan E, O'Donnell M, Tucker R, Vohr B. Social Emotional Factors Increase Risk of Postpartum Depression in Mothers of Preterm Infants. J Pediatr. 2016 Aug 5. pii: S0022-3476(16)30531-5. doi: 10.1016/j.jpeds.2016.07.008. [Epub ahead of print]
  209. Hays NP, Mao M, Zhang L, Ge J, Northington R, Yao M, Volger S. Infant feeding and health-related quality of life in healthy Chinese infants: results from a prospective, observational cohort study. Health Qual Life Outcomes. 2016 Aug 8;14(1):116. doi: 10.1186/s12955-016-0518-3.
  210. HealthActCHQ Confidential Scoring Rules Infant and Toddler Quality of Life Questionnaire - 47 (ITQOL-SF47) © 2015 Boston MA USA. [Provided as part of a paid license only]
  211. HealthActCHQ Confidential Scoring Rules Infant and Toddler Quality of Life Questionnaire - 97 (ITQOL-97) © 2015 Boston MA USA. [Provided as part of a paid license only]
  212. HealthActCHQ Inc. CHQ-CF45 US Norms. Boston, MA USA: HealthActCHQ, Inc. 2018. [Provided as part of a paid license only]
  213. HealthActCHQ Inc. CHQ-CF87 US Norms. Boston, MA, USA: HealthActCHQ, Inc. 2017.[ Provided as part of a paid license only]
  214. HealthActCHQ Inc. ITQOL-97 US Norms. Boston, MA: HealthActCHQ, 2017. [Provided as part of a paid license only]
  215. HealthActCHQ Inc. ITQOL-SF47 US Norms. Boston, MA: HealthActCHQ, 2017. [Provided as part of a paid license only]
  216. HealthActCHQ. Child Health Questionnaire Scoring and Interpretation Manual. 2013 HealthActCHQ Inc., Boston MA USA. (previously released in 2008 HACHQ Cambridge MA) [Includes PF50, PF28 and CF87. Provided as part of a paid license only]
  217. HealthActCHQ. CHQ -CF45 Scoring Manual . Boston, MA: HealthActCHQ, 2018. Boston MA USA. [Provided as part of a paid license only]
  218. Helseth S, Lund T, Christophersen KA. Health-related quality of life in a Norwegian sample of healthy adolescents: some psychometric properties of CHQ-CF87-N in relation to KINDL-N. J Adolesc Health, 2006;38(4): 416-25.
  219. Hepner KA, Sechrest L. Confirmatory factor analysis of the Child Health Questionnaire-Parent Form 50 in a predominantly minority sample. Quality of Life Research 2002;11(8):763-773.
  220. Hersh A. Measures of health-related quality of life in pediatric systemic lupus erythematosus: Childhood Health Assessment Questionnaire (C-HAQ), Child Health Questionnaire (CHQ), Pediatric Quality of Life Inventory Generic Core Module (PedsQL-GC), Pediatric Quality of Life Inventory Rheumatology Module (PedsQL-RM), and Simple Measure of Impact of Lupus Erythematosus in Youngsters (SMILEY). Arthritis Care Res (Hoboken). 2011 Nov;63 Suppl 11:S446-53. doi: 10.1002/acr.20559. Review. No abstract available. PMID: 22588765 [PubMed - indexed for MEDLINE]
  221. Hirshfeld AB, Kahle AL, Clark BJ 3rd, Bridges ND. Parent-Reported Health Status After Pediatric Thoracic Organ Transplant. J Heart Lung Transplant 2004;23(9):1111-8.
  222. Hofer M, Ruperto N, Saurenmann, Sauvain MJ, Huppertz HI, Landgraf JM, Prieur AM, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Swiss German and Swiss French versions of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S151-S157.
  223. Hoffmann F, Grimbacher B, Thiel J, Peter HH, Belohradsky BH; Vivaglobin Study Group. Home-based subcutaneous immunoglobulin G replacement therapy under real-life conditions in children and adults with antibody deficiency. Eur J Med Res. 2010 Jun 28;15(6):238-45. PMID: 20696632
  224. Hordijk J, Verbruggen S, Vanhorebeek I, Van den Berghe G, Utens E, Joosten K, Dulfer K. Health-related quality of life of children and their parents 6 months after children's critical illness. Qual Life Res. 2020 Jan;29(1):179-189. doi: 10.1007/s11136-019-02347-x. Epub 2019 Nov 6.
  225. Hosli EJ, Detmar SB, Raat H, Bruil J, Vogels TGC, Verrips EHW. Reliability, validity, and structure of the self report form of the Child Health Questionnaire (CHQ-CF87) in a Dutch adolescent population. Expert review of Pharmacoeconomics & Outcomes Research, 2007:7(4):393-401 (doi:10.1586/14737167.7.4.393)
  226. Hou Y, Liu W, Wong A, Chen C, Lin P, Hong J. Relationships among gross motor functions and health-related quality of life in children with cerebral palsy. Poster presented at the 2007 World Physical Therapy Conference. Poster# 30-09. Vancouver Canada, 4 June 2007.
  227. Houben-van Herten M, Bai G, Hafkamp E, Landgraf JM, Raat H. Determinants of Health-Related Quality of Life in School-Aged Children: A General Population Study in the Netherlands. PLOS|One. DOI:10.1371/journal.pone.0125083 May 1, 2015
  228. Houghton F, Gleeson M, and Kelleher K. The use of the Child Health Questionnaire (CHQ-CF87) in a rural Irish context. Irish J of Psychology, 2003;24:1-2,34-45.
  229. Houlihan CM, Conway M, Stallings V, Chumlea W, Worley G, Henderson R, Fung E, Rosenbaum F, Samoson-Fang L, Liptak G, O'Donnell M, Calvert R, Stevenson R. Growth in children with cerebral palsy: a population-based survey. Developmental Medicine and Child Neurology, SP#12,32. Abstract presented at the American Academy for Cerebral Palsy and Developmental Medicine, Washington DC. September 15-18, 1999.
  230. Houlihan CM, O'Donnell M, Conaway M and Stevesnon RD. Bodily pain and health-related quality of life in children with cerebral palsy. Dev Med & Child Neuro 2004:46(5):305-310.
  231. Huemer C, Ruperto N, Huemer M, Sailer-Hoeck M, Kaulfersch W, Schwarz R, Rettenbacher A, Kenzian H, Artacker G, Pilz I, Bernecker M, Huppertz HI, Landgraf JM, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Austrian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4) (Suppl. 23):S15-S19
  232. Hullmann SE, Ryan JL, Ramsey RR, Chaney JM, Mullins LL. Measures of general pediatric quality of life: Child Health Questionnaire (CHQ), DISABKIDS Chronic Generic Measure (DCGM), KINDL-R, Pediatric Quality of Life Inventory (PedsQL) 4.0 Generic Core Scales, and Quality of My Life Questionnaire (QoML). Arthritis Care Res (Hoboken). 2011 Nov;63 Suppl 11:S420-30. doi: 10.1002/acr.20637. Review. No abstract available. PMID: 22588762 [PubMed - indexed for MEDLINE]
  233. Hwang JW, Seo JY. Parents' perception about child's height. Ann Pediatr Endocrinol Metab. 2015 Jun;20(2):79-85. doi: 10.6065/apem.2015.20.2.79. Epub 2015 Jun 30.
  234. Iselin G, Le Brocque R, Kenardy J, Anderson V, McKinlay L. Which method of posttraumatic stress disorder classification best predicts psychosocial function in children with traumatic brain injury? J Anxiety Disord. 2010 Oct;24(7):774-9. Epub 2010 May 25.
  235. Jó?wiak S, Veggiotti P, Moreira J, Gama H, Rocha F, Soares-da-Silva P.
  236. Józwiak S, Veggiotti P, Moreira J, Gama H, Rocha F, Soares-da-Silva P. Effects of adjunctive eslicarbazepine acetate on neurocognitive functioning in children with refractory focal-onset seizures. Epilepsy Behav. 2018 Apr;81:1-11. doi: 10.1016/j.yebeh.2018.01.029. Epub 2018 Feb 22.
  237. Józwiak S, Veggiotti P, Moreira J, Gama H, Rocha F, Soares-da-Silva P. Effects of adjunctive eslicarbazepine acetate on neurocognitive functioning in children with refractory focal-onset seizures. Epilepsy Behav. 2018 Feb 13;81:1-11. doi: 10.1016/j.yebeh.2018.01.029. [Epub ahead of print]
  238. Jacobsen EB, Thastum M, Jeppesen JH, Pilegaard HK. Health-related quality of life in children and adolescents undergoing surgery for pectus excavatum. Eur J Pediatr Surg. 2010 Mar;20(2):85-91. Epub 2010 Jan 28.
  239. Janssens L, Gorter JW, Ketelaar M, Kramer WL, Holtslag. Health-related quality-of-life measures for long-term follow up in children after major trauma. Qual Life Res 2008:17(5):701-13.
  240. Jedel E, Carlsson J, and Stener-Victorin E. Health-related quality of life in child patients with temporomandibular disorder pain. European J of Pain 2007;11:557-563
  241. Jillisson PB, Graue M,Wentzel-Larsen T, Sovik O. The impact of continuous subcutaneous insulin infusion on health-related quality of life in children and adolescents with type 1 diabetes.
  242. Johansen H, Andresen Inger-Lise. Barn med skjelettdysplasi slik deres foreldre ser dem: En kartleggingsstudie. Pediastrik Endokrinologi 2009:23:42-7.
  243. Joos R, Ruperto N, Wouters C, Boven K, Raat, H, Landgraf JM, Veys EM, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Belgium-Flemish version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).Clin & Exp Rheum 2001;19(4)(Suppl. 23):S20-S24.
  244. Kanter LJ, Siegel CJ, Snyder CF, Pelletier EM, Buchner DA, Goss TF. Impact of respiratory symptoms on health-related quality of life and medical resource utilization of patients treated by allergy specialists and primary care providers. Annals of Allergy, Asthma & Immunology 2002;89(2):139-147.
  245. Karande S, Bhosrekar K, Kulkarni M, Thakker A. Health-related Quality of Life of Children with Newly Diagnosed Specific Learning Disability. J Trop Pediatr. 2008 Nov 28. [Epub ahead of print]
  246. Karande S, Bhosrekar K. Impact of attention-deficit/hyperactivity disorder on health-related quality-of-l ife of specific learning disability children [corrected]. Indian J Pediatr. 2009 Nov;76(11):1119-24. Erratum in: Indian J Pediatr. 2009 Dec;76(12):1246.
  247. Katz SL, Gaboury I, Keilty K, Banwell B, Vajsar J, Anderson P, Ni A, Maclusky I. Nocturnal hypoventilation: predictors and outcomes in childhood progressive neuromuscular disease. Arch Dis Child. 2010 Dec;95(12):998-1003. Epub 2010 Aug 31.
  248. Kaufman DA, Cuff AL, Wamstad JB, Boyle R, Gurka MJ, Grossman LB, and Peter Patrick. Fluconazole Prophylaxis in Extremely Low Birth Weight Infants and Neurodevelopmental Outcomes and Quality of Life at 8 to 10 Years of Age. The Journal of Pediatrics,2011;158(5):759-765.e1 doi:10.1016/j.jpeds.2010.11.002
  249. Keil MF, Merke DP, Gandhi R, Wiggs EA, Obunse K, Stratakis CA. Quality of life in children and adolescents one-year after cure of Cushing syndrome: A prospective study. Clin Endocrinol (Oxf). Clin Endocrinol (Oxf). 2008 Dec 17. [Epub ahead of print]PMID: 19170709 [PubMed - as supplied by publisher]
  250. Kelly MH, Briliante B, Kushner H, Gehron Robey P, Collins MT. Bone, 2005;37(3): 388-94. Physical function is impaired but quality of life preserved in patients with fibrous dysplasia of bone.
  251. Kennedy CH, Juárez AP, Becker A, Greenslade K, Harvey MT, Sullivan C, Tally B. Children with severe developmental disabilities and behavioral disorders have increased special healthcare needs. Dev Med Child Neurol 2007;49(12):926-30.
  252. Kirman A, Yildirim Sari H. Health status of hearing-impaired children and adolescents. Int J Nurs Pract. 2013 Jun;19(3):233-40. doi: 10.1111/ijn.12071.
  253. Klassen A, Landgraf JM, Lee S, Barer M, Raina P. Health related quality of life in 3 and 4 year old children and their parents: preliminary findings about a new questionnaire. Health and Quality of Life Outcomes 2003;1:81.
  254. Klassen AF, Lee SK, Raina P, Chan HW, Mathew D, Brabyn D. Health status and health-related quality of life in a population-based sample of neonatal intensive care unit graduates. Pediatrics 2004;113:594-600.
  255. Klassen AF, Miller A, Fine S. Health-Related Quality of Life in Children and Adolescents Who Have a Diagnosis of Attention-Deficit/Hyperactivity Disorder. Pediatrics 2004;114(5):541-547.
  256. Klassen AF, Miller A, Fine S. Agreement between parent and child report of quality of life in children with attention-deficit/hyperactivity disorder. Child Care Health Dev. 2006 Jul;32(4):397-406.
  257. Knibb RC, Ibrahim NF, Petley R, Cummings AJ, King RM, Roberts G, Erlewyn-Lajeunesse M, Lucas JS. Validation of the Paediatric Food Allergy Quality of Life Questionnaire (PFA-QL). Pediatr Allergy Immunol. 2013 May;24(3):288-92. doi: 10.1111/pai.12060.
  258. Knibb RC, Stalker C. Validation of the Food Allergy Quality of Life-Parental Burden Questionnaire in the UK. Qual Life Res. 2012 Oct 18. [Epub ahead of print]
  259. Kocher MS, Smith JT, Iversen MD, Brustowicz K, Ogunwole O, Andersen J, Yoo WJ, McFeely ED, Anderson AF, Zurakowski D. Reliability, validity, and responsiveness of a modified International Knee Documentation Committee Subjective Knee Form (Pedi-IKDC) in children with knee disorders. Am J Sports Med. 2011 May;39(5):933-9. Epub 2010 Nov 10.
  260. Kompoliti K. Sources of Disability in Tourette Syndrome: Children vs. Adults. Tremor Other Hyperkinet Mov (N Y). 2015; 5: 318. Published online 2016 Jan 11. doi: 10.7916/D8Z60NQ2.
  261. Konijnenberg AY, Uiterwaal CS, Kimpen JL, van der Hoeven J, Buitelaar JK, de Graeff-Meeder ER. Children with unexplained chronic pain: substantial impairment in everyday life. Arch Dis Child. 2005 Jul;90(7):680-6. Epub 2005 May 17
  262. Koomen I, Raat H, Jennekens-Schinkel A, Grobbee DE, Roord JJ, van Furth M. Academic and behavioral limitations in health-related quality of life in school-age survivors of bacterial meningitis. Qual Life Res, 2005;14(6):1563-72
  263. Koomen I. Prognosis of bacterial meningitis in childhood. Unpublished master's thesis, Utrecht University Medical Center. 2003.
  264. Koot HM & Wallander JL. (Eds.). (2001). Quality-of-life in children and adolescent illness: concepts, methods, and findings. East Sussex, UK: Brunner-Routledge.
  265. Koscik RL, Douglas JA, Zaremba K, Rock MJ, Splaingard ML, Laxova A, Farell PM. Quality of life in children with cystic fibrosis. J Pediatr, 2005;147(3 Suppl):S64-8.
  266. Kovtiuk NI. [Sleep as a physiological component of quality of life in children]. Lik Sprava. 2013 Jul-Aug;(5):50-4.
  267. Kozlova IA, Pukhovska AA, Riabukhin VIu. The psyhological and psychiatric study of children living in Kaluga provinces, Russia (the aftermath of the Chernobyl accident). Zh Nevrol Psikhiatr Im S S Korsakova 1995:95(1):70-74.
  268. Krab LC, Oostenbrink R, de Goede-Bolder A, Aarsen FK, Elgersma Y, Moll HA. Health-Related Quality Of Life in Children with Neurofibromatosis Type 1: Contribution of Demographic Factors, Disease-Related Factors, and Behavior. 1: J Pediatr. 2008 Oct 23. [Epub ahead of print]
  269. Kruizinga I, Jansen W, van Sprang NC, Carter AS, Raat H. The Effectiveness of the BITSEA as a Tool to Early Detect Psychosocial Problems in Toddlers, a Cluster Randomized Trial. PLoS One. 2015 Sep 18;10(9):e0136488. doi: 10.1371/journal.pone.0136488. eCollection 2015.
  270. Kurtin P, Landgraf JM, Abetz L. Patient-based health status measures in pediatric dialysis: Expanding the assessment of outcomes. American Journal of Kidney Diseases 1994;24:376-382.
  271. Kvrgic S, Niciforovic O, Legetic B., & Potic M. Influences of sociodemographic characteristics of children on reports of their quality of life as a part of a national study in Yugoslavia. Quality of Life Research 2000;9(30:299 (abstract #1425).
  272. Kvrgic S, Niciforovic-Surkovic O, Ukropina S, & Potic M. Quality of life assessment in school-age children and adolescents in Yugoslavia from the viewpoint of the children and their parents. Medicinski Pregled 2001;54(7-8):323-326.
  273. Kvrgic S, Niciforovic-Surkovic O, Ukropina S. Effect of sociodemographic characteristics on health status and quality of life in schoolchildren and adolescents in Yugoslavia. Medicinski Pregled 2001;54(5-6):229-33.
  274. Lam MW, Klassen AF, Montgomery CJ, LeBlanc JG, Skarsgard ED. Quality-of-life outcomes after surgical correction of pectus excavatum: a comparison of the Ravitch and Nuss procedures. Pediatr Surg, 2008;43(5): 819-25.
  275. Lambert LM, Minich L, Newburger JW, Lu M, Pemberton VL, McGrath EA, Atz AM, Xu M, Radojewski E, Servedio D, and McCrindle BW, for the Pediatric Heart Network Investigators. Parent- Versus Child-Reported Functional Health Status After the Fontan Procedure. Pediatrics. 2009 November; 124(5): e942–e949. Published online 2009 October 19. doi: 10.1542/peds.2008-1697
  276. Landgraf J.M. (2021) Child Health Questionnaire (CHQ). In: Maggino F. (eds) Encyclopedia of Quality of Life and Well-Being Research. Springer, Cham. https://doi.org/10.1007/978-3-319-69909-7_324-2
  277. Landgraf JM (2014). Child Health Questionnaire. In: Michalos AC (Ed.). Encyclopedia of Quality of Life and Well-Being Research. Springer, Dordrecht, Netherlands: Springer, pp 698-702.
  278. Landgraf JM, Abetz L, DeNardo BA, Tucker LB. Clinical validity of the Child Health Questionnaire-Parent Form in children with rheumatoid arthritis. Poster presented at the National Scientific Meeting of the American College of Rheumatology, San Francisco, CA. October 1995.
  279. Landgraf JM, Abetz L, Ware JE. (1999,1996). The CHQ: A User's Manual (2nd printing). Boston, MA: HealthAct. (1996 1st printing). Boston, MA: The Health Institute. [No longer in print. Provided for historical reference. See HealthActCHQ (2013) CHQ Scoring and Interpretation Manual].
  280. Landgraf JM, Abetz L, Ware JE. Psychometric Results of the CHQ-PF50 Form in a Normative U.S. Sample of Children and Its Clinical Application Across Several Condition Groups. Competitive paper presentation at the Third Annual Symposium of Contributed Papers, Quality of Life Evaluation, Boston, MA. May 1996.
  281. Landgraf JM, Abetz L. (1996). Measuring health outcomes in pediatric populations: Issues in psychometrics and application. In Spilker, B (Ed.) Quality of life and pharmacoeconomics in clinical trials (2nd ed.) (pp 793-802). Philadelphia, PA: Lippincott-Raven Publishers.
  282. Landgraf JM, Abetz L. (1998). Influences of sociodemographic characteristics on parental reports of children's physical and psychosocial well-being: Early experiences with the Child Health Questionnaire. In Drotar D. (Ed.) Measuring Health-Related Quality of Life in Children and Adolescents (pp. 105-126). New Jersey: Lawrence Erlbaum Associates, Inc.
  283. Landgraf JM, Abetz L. Functional status and well-being of children representing three cultural groups: Initial self-reports using the CHQ-CF87. Psychology and Health 1997;12(6):839-854.
  284. Landgraf JM, Abetz L. The Infant/toddler quality of life questionnaire: Conceptual framework, logic, content, and preliminary psychometric results. Final Report to Schering-Plough Laboratories and Health Technology Associates. New England Medical Center, July 1994. (Proprietary document. Citation listed for historical reference only.)
  285. Landgraf JM, Abidari J, Cilento BG, Cooper CS, Schulman SL and Ortenberg J. Coping, commitment, and attitude: quantifying the everyday burden of enuresis on children and their families. Pediatrics, 2004;113:334-344.
  286. Landgraf JM, Arnold LE, McKay M. Treatment satisfaction after conversion from oral transdermal methylphenidate. Poster presentation at the American Psychiatric Association Annual Meeting, San Diego CA. 19-24 May 2007.
  287. Landgraf JM, Arnold LE, McKay MJ. Treatment satisfaction after conversion from oral transdermal methylphenidate. Poster presentation at the 59th Institute on Psychiatric Services - IPS, New Orleans LA. 11-14 October 2007
  288. Landgraf JM, Erling A, Wilkund I, Abetz L, Ware JE. The Child Health Questionnaire: Issues in translation, language, and culture for Swedish children and their parents. Poster presentation at the 2nd Annual Meeting of the International Society for Quality of Life Research, Montreal, Quebec, Canada. October 1995.
  289. Landgraf JM, Maunsell E, Nixon-Speechley K, Bullinger M, Campbell S, Abetz L, Ware JE. Canadian-French, German, and United Kingdom versions of the Child Health Questionnaire (CHQ-PF50): Methodology and Preliminary Item Scaling Results. Quality of Life Research 1998;7(5):433-445.
  290. Landgraf JM, Maunsell E, Speechley KN, Abetz L, Gibbons L, Barrera M, Ware JE. Psychometric properties of the Child Health Questionnaire (Parent Form) Among English and French-Speaking Canadian Respondents: Preliminary Results. Paper presented at the 2nd Meeting of the International Society for Quality of Life Research, Montreal, Quebec, Canada. October 1995.
  291. Landgraf JM, Ravens-Sieberer U, Bullinger M. Quality of life research in children: Methods and instruments. Dialogues in Pediatric Urology 1997:20(11):5-7.
  292. Landgraf JM, Rich M, Rappaport L. Measuring quality of life in children with attention-deficit/ hyperactivity disorder and their families: Development and evaluation of a new tool. Arch. Pediatr. Adolesc. Med. 2002;156:384-391.
  293. Landgraf JM, Shingler T. ADHD-Specific Quality of Life with Mixed Amphetamine Salts Extended Release in Adults with ADHD. Poster presentation at the 159th Annual Meeting of the American Psychiatric Association, Toronto Canada. 24 May 2006.
  294. Landgraf JM, Shingler T. ADHD-specific quality of life with mixed amphetamine salts extended release in adults with ADHD. Poster presented at the 19th Annual Meeting of the U.S. Psychiatric and Mental Health Congress. New Orleans, LA. 16 November 2006.
  295. Landgraf JM, van Grieken A, Raat H. Giving Voice to the Child Perspective: Empirical Development, Psychometrics and Relative Precision Findings for the Child Health Questionnaire Child Self-Report Short-Form (CHQ-CF45). Quality of Life Research, 2018: 27(8), 2165-2176. DOI 10.1007/s11136-018-1873-9
  296. Landgraf JM, Vogel I, Oostenbrink R, van Baar ME, Raat H. Parent-reported health outcomes in infants/toddlers: measurement properties and clinical validity of the ITQOL-SF47. Quality of Life Research, 2013, March, 22(3):635-646. Epub 2012 April DOI 10.1007/s11136-012-0177-8.
  297. Landgraf JM, Ware JE, Rossi-Roh K. (1993). Measuring the Relative Health and Well-Being of Children with Attention Deficit Hyperactivity Disorder. Results from the Children's Health and Quality of Life Project. Final report to Ciba-Geigy, Inc., Project MCS#447, Boston, MA: The Health Institute, New England Medical Center.
  298. Landgraf JM, Ware JE, Schor E, Davies AR, Rossi-Roh K. Comparison of health status profiles for children with medical conditions: Preliminary psychometric and clinical results from the Children's Health and Quality of Life Project. Paper presented at 10th Annual Meeting of the Association for Health Services Research, Washington, D.C. June 1993.
  299. Landgraf JM, Ware JE, Schor E, Davies AR, Rossi-Roh K. Health profiles in children with psychiatric and other medical conditions. Paper presented at the 9th World Congress of Psychiatry, Rio de Janeiro, Brazil. June 1993.
  300. Landgraf JM, Wilens TE, Kerkering J. Quality of life and parent satisfaction with methylphenidate transdermal system. Poster presentation at the 53rd Annual Meeting of the American Academy of Child and Adolescent Psychiatry, San Diego California. 27 October 2006.
  301. Landgraf JM. "Health-related quality of life assessment in pediatric clinical trials: a brief introduction". In P. Helms and P Stonier (eds.) Paediatric Clinical Research Manual. 2005, pp.41.4-14.13, Euromed Communications.
  302. Landgraf JM. (1999). The CHQ and its application to psychological testing and outcomes for the behavioral healthcare practitioner. In Maruish M. (Ed.) The Use of Psychological Testing for Treatment, Planning, and Outcome Assessment (pp 665-677). New Jersey: Lawrence-Erlbaum Press.
  303. Landgraf JM. 2013. The Child Health Questionnaire in Encyclopedia of Quality of Life and Well-Being Research (Alex C. Michalos, P. Maurine Kahlke and Daniel Quinones Eds). Springer Verlag
  304. Landgraf JM. Evaluating quality of life in adults with ADHD following triple-bead mixed amphetamine salts (SPD465) treatment. Poster presentation at the American Psychiatric Association Annual Meeting, San Diego CA. 19-24 May 2007.
  305. Landgraf JM. Issues in measuring and monitoring the health-related quality of life of children surviving cancer. International Journal of Cancer 1999;12:147-150.
  306. Landgraf JM. Measuring Quality of life in Adults with ADHD. Poster presented at the 158th American Psychiatric Associaton Annual Meeting, Atlanta Georgia. 21-26 May 2005.
  307. Landgraf JM. Measuring Quality of Life in Adults with ADHD: Preliminary Findings on the AIM-A. Poster presented at the American Psychological Association Annual Meeting, Washington DC. 19 August 2005.
  308. Landgraf JM. Measuring Quality of Life in Adults with ADHD: Preliminary Findings with the Adult Attention-Deficit Hyperactivity Disorder (ADHD) Impact Module (AIM-A). Poster presentation at the 18th Annual U.S. Psychiatric & Mental Health Congress, Las Vegas Nevada. 8 November 2005.
  309. Landgraf JM. Precision and sensitivity of the short-form pediatric enuresis module to assess quality of life (PEMQOL). J Ped Urol,2007;3(2):109-17. doi:10.1016/j.jpurol.2006.04.004
  310. Landgraf JM. The Child Health Questionnaire in Encyclopedia of Quality of Life and Well-Being Research Filomena Maggino (Ed). Springe. Forthcoming
  311. Landgraf JM. Triple-Bead mixed amphetamine salts (SPD465) improves quality of life in adults with ADHD. Poster presentation at the American Psychiatric Association Annual Meeting, San Diego CA. 19-24 May 2007.
  312. Landgraf, JM. “Practical considerations in the measurement of health-related quality of life in child/adolescent clinical trials”. In P. Fayers and R.D. Hays (2nd edition eds.) Assessing the Quality of life in Clinical Trials. Oxford Press, 2004, pp. 339-367.
  313. Landgraf, JM. Monitoring quality of life in adults with ADHD: Reliability and validity of a new measure. Journal of Attention Disorders, 2007;11(3):351-362. Prepublished May 9, 2007; DOI: 10.1177/1087054707299400.
  314. Landgraf, JM. “The CHQ and its application to psychological testing and outcomes for the behavioral healthcare practitioner" In M. Maruish (Ed) The Use of Psychological Testing for Treatment, Planning, and Outcome Assessment Volume 2. Lawrence-Erlbaum Press, 2004, pp. 443-460.
  315. Law M, Baum C, and Dunn W. (2005). Measuring Occupational Performance: Supporting Best Practice in Occupational Therapy. 2nd ediiton. Thoroughfare NJ: SLACK Inc.
  316. Law M1, Hanna S, Anaby D, Kertoy M, King G, Xu L. Health-related quality of life of children with physical disabilities: a longitudinal study. BMC Pediatr. 2014 Jan 30;14:26. doi: 10.1186/1471-2431-14-26.
  317. Lee SL, Cheung YF, Wong HS, Leung TH, Lam TH, Lau YL. Chronic health problems and health-related quality of life in Chinese children and adolescents: a population-based study in Hong Kong. BMJ Open. 2013 Jan 3;3(1). doi:pii: e001183. 10.1136/bmjopen-2012-001183. Print 2013. PMID: 23293240 [PubMed]
  318. Legetic B, Kvrgic S, & Niciforovic-Surkovic O. Quality of life among school children and youth in Yugoslavia- Child/Parent Differences. Quality of Life Research 2000;9(3):298 (abstract #1423).
  319. Legett S, Karahodzic, HK, Klie M, Klepper M, Klutho R, Homan S, Noguchi A. Health Status of Bosnian Children in St. Louis, Missouri. Poster #867 presented at the Pediatric Academic Societies Annual Meeting, Baltimore MD. April 2001.
  320. Lepore L, Paloni G, Caorsi R, Alessio M, Rigante D, Ruperto N, Cattalini M, Tommasini A, Zulian F, Ventura A, Martini A, Gattorno M. Follow-up and quality of life of patients with cryopyrin-associated periodic syndromes treated with Anakinra. J Pediatr. 2010 Aug;157(2):310-315.e1. Epub 2010 May 15.
  321. Levi R.B. & Drotar D. Health-related quality of life in childhood cancer: discrepancy in parent-child reports. International Journal of Cancer Supplement 1999;12:58-64.
  322. Levy DM1, Peschken CA, Tucker LB, Chédeville G, Huber AM, Pope JE; Canadian Network for Improved Outcomes in SLE (CaNIOS) 1000 Faces Investigators, Silverman ED. Health related quality of life in childhood-onset systemic lupus erythematosus is associated with ethnicity: Results from a multiethnic multicenter canadian cohort. Arthritis Care Res (Hoboken). 2014 May 12. doi: 10.1002/acr.22363. [Epub ahead of print]
  323. Liptak GS, O'Donnell M, Conaway M, Chumlea WC, Wolrey G, Henderson RC, Fung E, Stallings VA, Samson-Fang L, Calvert R, Rosenbaum P, Stevenson RD. The health status of children with moderate to severe cerebral palsy. Developmental Medicine and Child Neurology 2001;43(6):364-370.
  324. Lock J, Raat H, Peters M, Scholten M, Beijlevelt M, Oostenbrink R, Leebeek FW, Moll HA, Cnossen MH. Optimization of home treatment in haemophilia: effects of transmural support by a haemophilia nurse on adherence and quality of life. Haemophilia. 2016 Oct 25. doi: 10.1111/hae.13043. [Epub ahead of print]
  325. Lollar DJ, Simeonsson RJ, Nanda U. Measures of outcomes for children and youth. Archives of Physical Medicine and Rehabilitation,2000;81(Suppl. 2):S46-S51.
  326. Lovell DJ, Ruperto N, Mouy R, Paz E, Rubio-Pérez N, Silva CA, Abud-Mendoza C, Burgos-Vargas R, Gerloni V, Melo-Gomes JA, Saad-Magalhaes C, Chavez-Corrales J, Huemer C, Kivitz A, Blanco FJ, Foeldvari I, Hofer M, Hans-Iko Huppertz, Job CJ Deslandre, Minden K, Punaro M, Block AJ, Giannini EH, and Martini A, MD,2,23 for the Pediatric Rheumatology Collaborative Study Group (PRCSG) and the Paediatric Rheumatology International Trials Organization (PRINTO) Long-Term Safety, Efficacy, and Quality of Life with Intravenous Abatacept in Juvenile Idiopathic Arthritis: Up to 7 Years of Treatment. Arhritis and Rheumatology, 2015 doi: 10.1002/art.39234
  327. Małkowska-Szkutnik A, Tabak I, Mazur J. [Application of the Polish version of CHQ-PF28 questionnaire in two population studies carried out in 2003 and 2008]. Med Wieku Rozwoj. 2010 Jul-Sep;14(3):246-59. Polish.
  328. Machado CSM, Ruperto N, Silva CHM, Ferriani VPL, Roscoe I, Campos LMA, Oliveira SKF, Kiss MHB, Bica BERG, Sztajnbok F, Len CA, Melo-Gomes JA, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Brazilian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S25-S29.
  329. Macneily A., Steinbok P., Afshar, K., Landgraf J. Treatment of persistent urinary incontinence in children with occult tethered cord syndrome by section of the filum terminale: a randomized controlled pilot study. Oral presentation at the Annual Meeting of the American Urological Association, May 15-19, New Orleans LA., USA.
  330. Majnemer A, Limperopoulos C, Shevell M, Rohlicek C, Rosenblatt B, Tchervenkov C. Health and well-being of children with congenital cardiac malformations, and their families, following open-heart surgery. Cardiol Young. 2006 Apr;16(2):157-64.PMID: 16553978
  331. Manlhiot C, Knezevich S, Radojewski E, Cullen-Dean G, Williams WG, and McCrindle BW. Functional health status of adolescents after the Fontan procedure – comparison with their siblings. Can J Cardiol. 2009 September; 25(9): e294–e300.
  332. Manor I, Magen A, Keidar D, Rosen S, Tasker H, Cohen T, Richter Y, Zaaroor-Regev D, Manor Y, Weizman A. The effect of phosphatidylserine containing Omega3 fatty-acids on attention-deficit hyperactivity disorder symptoms in children: A double-blind placebo-controlled trial, followed by an open-label extension. Eur Psychiatry. 2011 Jul 30. [Epub ahead of print]
  333. Manos M, Frazier T Landgraf JL, Weiss M, Hodgkins P. Health-related quality of life and medication satisfaction in children with ADHD treated with the methylphenidate transdermal system. Current Medical Research and Opinion 2009;25(12):3001-10.
  334. Marcet-Gonzalez J, anBarton G, Lambert E. Severity of sialorrhea and tracheal secretions in infants and toddlers with a tracheostomy with a focus on quality of life. American Journal of Otolaryngology. Volume 42, Issue 6, November–December 2021, 103074
  335. Marklund B, Ahlstedt S, Nordstrom A. Health-related quality of life in food hypersensitive schoolchildren and their families: parents' perceptions. Health Qual Life Outcomes,2006;4():48.
  336. Martel D, Bussières JF, Théorêt Y, Lebel D, Kish S, Moghrabi A, Laurier C. Use of alternative and complementary therapies in children with cancer. Pediatr Blood Cancer, 2005;44(7):660-8.
  337. Matsuda T, Noguchi M, Umeno Y, Kato N. QOL research in child health. Present state and issues. Nippon Koshu Eisei Zasshi, 2006;53(11): 805-17.
  338. Matsumoto H, Vitale MG, Hyman JE, Roye DP Jr.Can parents rate their children's quality of life? Perspectives on pediatric orthopedic outcomes. J Pediatr Orthop B. 2011 May;20(3):184-90.
  339. Mattera M, Vernon MK, Raluy-Callado M, Mikl J. Validation of the shortened Hunter Syndrome-Functional Outcomes for Clinical Understanding Scale (HS-FOCUS). Health Qual Life Outcomes. 2018 Nov 8;16(1):209. doi: 10.1186/s12955-018-1006-8.
  340. Matza LS, Rentz AM, Secnik K, Swensen AR, Revicki DA, Michelson D, Spencer T, Newcorn JH, Kratochvil CJ. The link between health-related quality of life and clinical symptoms among children with attention-deficit hyperactivity disorder. J Dev Behav Pediatr, 2004;25(3): 166-74.
  341. Matza LS, Secnik K, Mannix S, Sallee FR. Parent-proxy EQ-5D ratings of children with attention-deficit hyperactivity disorder in the US and the UK. Pharmacoeconomics, 2005;23(8):777-90
  342. Maxwell D, Thompson S, Richmond B, McCagg J, Ubert A. Quality of life after laparoscopic cholecystectomy for biliary dyskinesia in the pediatric population: a pilot study. Am Surg. 2012 Jan;78(1):111-8.
  343. Mazur J, Małkowska-Szkutnik A. Health-related quality of life in 13-year-old Polish adolescents measured by CHQ-PF28 questionnaire in relation to family socioeconomic status in the first year of life]. Med Wieku Rozwoj. 2010 Jul-Sep;14(3):260-71. Polish.
  344. McCarthy ML, Silberstein CE, Atkins EA, Harryman SE, Sponseller PD, Hadley-Miller NA. Comparing reliability and validity of pediatric instruments for measuring health and well-being of children with spastic cerebral palsy. Developmental Medicine and Child Neurology 2002;44(7):468-476.
  345. McCrindle BW, Williams RV, Mital S, Clark BJ, Russell JL, Klein G, Eisenmann JC. Physical activity levels in children and adolescents are reduced after the Fontan procedure, independent of exercise capacity, and are associated with lower perceived general health. Arch Dis Child,2007;92(6):509-14
  346. McCrindle BW, Williams RV, Mitchell PD, Hsu DT, Paridon SM, Atz AM, Li JS, Newburger JW for the Pediatric Heart Network. Relationship of Patient Medical Characteristics to Health Status in Children and Adolescents After the Fontan Procedure. Circulation 2006;113(8):1123-9.
  347. McCrindle BW, Zak V, Pemberton VL, Lambert LM, Vetter VL, Lai WW, Uzark K, Margossian R, Atz AM, Cook A, Newburger JW. Functional health status in children and adolescents after Fontan: comparison of generic and disease-specific assessments. Cardiol Young. 2013 Jun 10:1-9. [Epub ahead of print]. PMID: 23746330
  348. McCullough N and Parkes J. Use of the Child Health Questionnaire in children with cerebral palsy: A systematic review and evaluation of the psychometric properties. J Ped Psychol. 2008;32(1):80-90.
  349. McCullough N, Parkes J, White-Koning M, Beckung E, Colver A. Reliability and validity of the Child Health QuestionnairePF-50 for European children with cerebral palsy. J Pediatr Psychol. 2009 Jan-Feb;34(1):41-50. Epub 2008 May 22.
  350. McDowell BC, Duffy C, Lundy C. Pain report and musculoskeletal impairment in young people with severe forms of cerebral palsy: A population-based series. Res Dev Disabil. 2017 Jan;60:277-284. doi: 10.1016/j.ridd.2016.10.006. Epub 2016 Oct 25.
  351. McGowan EC, Nan Du , Hawes K. Tucker R, O'Donnell M, and Vohr B. Maternal Mental Health and Neonatal Intensive Care Unit Discharge Readiness in Mothers of Preterm Infants. (J Pediatr 2017)
  352. McGrath M, Bukstein DA, Buchner DA, Guzman GL, Landgraf JM, Goss T. Assessment of the relationship between disease severity and general and disease specific health-related quality of life in pediatric asthma patients. Ambulatory Child Health 1999;5, 249-261.
  353. McNeill, M., Noyek, S., Engeda, E. et al. Assessing the engagement of children and families in selecting patient-reported outcomes (PROs) and developing their measures: a systematic review. Qual Life Res 30, 983–995 (2021). https://doi.org/10.1007/s11136-020-02690-4
  354. Meert KL, Slomine BS, Christensen JR, Telford R, Holubkov R, Dean JM, Moler FW; Therapeutic Hypothermia after Pediatric Cardiac Arrest Trial Investigators. Family Burden After Out-of-Hospital Cardiac Arrest in Children. Pediatr Crit Care Med. 2016 Jun;17(6):498-507. doi: 10.1097/PCC.0000000000000726.
  355. Melo-Gomes JA, Ruperto N, Canhao H, Fonseca JE, Quintal A, Salgado M, Santos MJ, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Portuguese version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S126-S130.
  356. Michelson D, Faries D, Wernicke J, Kelsey D, Kendrick K, Sallee FR, Spencer T, & the Atomoxetine ADHD Study Group. Atomoxetine in the treatment of children and adolescents with Attention-Deficit/Hyperactivity Disorder: A randomized, placebo-controlled, dose-response study. Pediatrics 2001;108(5):1-9.
  357. Mihaylova D, Ruperto N, Kibarova V, Teltcharova-Mihaylovska A, Kalaikov D, St. Stefanov, Lisichki K, Bojidarova M, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Bulgarian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S30-S34.
  358. Miller V, Palermo TM, & Grewe SD. Quality of life in pediatric epilepsy: demographic and disease-related predictors and comparison with healthy controls. Epilepsy & Behavior 2003;4:36-42.
  359. Mina R1, Klein-Gitelman MS2, Nelson S3, Eberhard BA4, Higgins G5, Singer NG6, Onel K7, Tucker L8, O'Neil KM9, Punaro M10, Levy DM11, Haines K12, Ying J13, Brunner HI3. Effects of obesity on health-related quality of life in juvenile-onset systemic lupus erythematosus. Lupus. 2014 Oct 21. pii: 0961203314555537. [Epub ahead of print]
  360. Miranda, M. Ruperto N, Toso MS, Lira LW, Gonzalez B, Norambuena X, Quezada A, De Inocencio J, Mendez C, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Chilean version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S35-S40.
  361. Mohangoo AD, de Koning HJ, de Jongste JC, Landgraf JM, van der Wouden JC, Jaddoe VW, Hofman A, Moll HA, Mackenbach JP, Raat H. Asthma-like symptoms in the first year of life and health-related quality of life at age 12 months: the Generation R study. Qual Life Res. 2012 Apr;21(3):545-54. Epub 2011 Jul 27.
  362. Mohangoo AD, de Koning HJ, Mangunkusumo RT, Raat H. Health-related quality of life in adolescents with wheezing attacks. J Adolesc Health, 41(5): 464-71.
  363. Moons P, Barrea C, De Wolf D, Gewillig M, Massin M, Mertens L, Oavaert C, Suys B, Sluysmans T. Changes in perceived health of children with congenital heart disease after attending a special sports camp. Pediatric Cardiology,2006;27:67-72. DOI 10.1007/s00246-005-1021-5
  364. Moons P, Barrea C, Suys B, Oavaert C, Boshoff D, Eyskens B, Vandenrijn C, Sluysmans T. Improved perceived health status persists three months after a special sports camp for children with congenital heart disease. Eur J Pediatrics,2006;165:767-772. DOI 10.1007/s00431-006-0171-7.
  365. Morales NM , Silva CHM, Frontarolli, AC, Araújo RRH, Rangel VO, Pinto RMC, Morales RR and Gomes DC. Psychometric properties of the initial Brazilian version of the CHQ-PF50 applied to the caregivers of children and adolescents with cerebral palsy. Quality of Life Research 2007;16(3):434-444. DOI10.1007/s11136-006-9136-6 (2006).
  366. Moretti C, Viola S, Pistorio A, Magni-Manzoni S, Ruperto N, Martini A, Ravelli A. Relative responsiveness of condition specific and generic health status measures in juvenile idiopathic arthritis. Ann Rheum Dis,2005;64(2):257-61.
  367. Moroldo MB, Rupeerto N, Espada G, Russo R, Liberatore D, Cuttica R, Giacomone D, Garay S, De Inocencio J, De Cunto C, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Argentinian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S10-S14.
  368. Msall ME. Measuring functional skills in preschool children at risk for neurodevelopmental disabilities. Ment Retard Dev Disabil Res Rev. 2005;11(3):263-73.
  369. Mulders-Manders CM, Kanters TA, van Daele PLA, Hoppenreijs E, Legger GE, van Laar JAM, Simon A, Hakkaart-van Roijen L. Decreased quality of life and societal impact of cryopyrin-associated periodic syndrome treated with canakinumab: a questionnaire based cohort study. Orphanet J Rare Dis. 2018 Apr 20;13(1):59. doi: 10.1186/s13023-018-0799-1.
  370. Mulligan K, Kassoumeri L, Etheridge A, Moncrieffe H, Wedderburn LR, and Newman S. Mothers’ reports of the difficulties that their children experience in taking methotrexate for Juvenile Idiopathic Arthritis and how these impact on quality of life. Pediatric Rheumatology 2013, 11:23 doi:10.1186/1546-0096-11-23
  371. Murphy KR, Fitzpatrick S, Cruz-Rivera M, Miller CJ, Parasuraman B. Effects of budesonide inhalation suspension compared with cromolyn sodium nebulizer solution on health status and caregiver quality of life in childhood asthma. Pediatrics,2003;112(3 Pt 1): e212-9.
  372. Mussatto KA, Sawin KJ, Schiffman R, Leske J, Simpson P, Marino BS. The Importance of Self-Perceptions to Psychosocial Adjustment in Adolescents With Heart Disease. J Pediatr Health Care. 2013 Jul 30. pii: S0891-5245(13)00192-2. doi: 10.1016/j.pedhc.2013.05.006. [Epub ahead of print. PMID: 23910944
  373. Najafi Fard T, Pourmohamadrezatajrishi M, Sajedi F, Pouria P, Delavar Kasmaei H. The Effectiveness of Attribution Retraining on Health Enhancement of Epileptic Children. Iran J Child Neurol. 2016 Spring;10(2):53-9.
  374. Nascimento MM, Melo TR, Pinto RM, Morales NM, Mendonça TM, Paro HB, Silva CH. Parents' perception of health-related quality of life in children and adolescents with excess weight. J Pediatr (Rio J). 2016 Jan-Feb;92(1):65-72. doi: 10.1016/j.jped.2015.04.006. Epub 2015 Sep 21.
  375. Newcorn JH, Spencer TJ, Biederman J, Milton DR, Michelson D. Atomoxetine treatment in children and adolescents with attention-deficit/hyperactivity disorder and comorbid oppositional defiant disorder. J Am Acad Child Adolesc Psychiatry 2005;44(3):240-8.
  376. Ng JY, Landgraf JM, Chiu CSW, Cheng NL, Cheung YF. Preliminary evidence of the measurement properties of the Chinese version of the Child Health Questionnaire, parent form (PF50) and child form (CHQ-CF87). Quality of Life Research 2005;14:1775-81.
  377. Ngo KD, Farmer DG, McDiarmid SV, Artavia K, Ament ME, Vargas J, Busuttil RW, Colangelo J, Esmailian Y, Gordon-Burroughs S, Duffy J, Venick RS. Pediatric health-related quality of life after intestinal transplantation. Pediatr Transplant. 2011 Dec;15(8):849-54. doi: 10.1111/j.1399-3046.2011.01590.x.
  378. Nicolay U, Haag S, Eichmann F, Herget S, Spruck D and Gardulf A. Measuring treatment satisfaction in patients with primary immunodeficiency diseases receiving lifelong immunoglobulin replacement therapy. Quality of Life Research 2005;12(7):1683-1691.
  379. Nielsen S, Ruperto N, Herlin T, Pedersen FK, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Danish version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S50-S54.
  380. Nikishina I, Ruperto N, Kuzmina N, Shelepina T, Illarionova O, Salougina S, Kaleda M, Borodacheva O, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Russian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S131-S135.
  381. Nixon Speechley K, Maunsell E, Desmeules M, Schanzer D, Landgraf JM, Feeny DH, Barrera ME. Mutual concurrent validity of the Child Health Questionnaire and the Health Utilities Index: An exploratory analysis using survivors of childhood cancer. International Journal of Cancer Supplement 1999;12:95-105.
  382. Norrby U, Nordholm L, Andersson Gare, Fasth A. Health-related quality of life in children diagnosed with asthma, diabetes, juvenile chronic arthritis or short stature. Acta Paediatr,2006;95(4):450-6.
  383. Norrby U, Nordholm L, Fasth A. Reliability and validity of the swedish version of child health questionnaire. Scand J Rheumatol, 2003;32(2): 101-7.
  384. Norrby U. Nordholm LA. Reliability and validity of a Swedish version of Child Health Questionnaire (CHQ). Quality of Life Research 2001;10(3):287 (abstract #377).
  385. Nugent J, Ruperto N, Grainger J, Machado C, Sawhney S, Baildam E, Davidson J, Foster H, Hall A, Hollingworth P, Sills J, Venning H, Walsh JE, Landgraf JM, Roland M, Woo P, for the Paediatric Rheumatology International Trials Organization (PRINTO). The British version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S163-S167.
  386. Nydegger A, Srivastava A, Wake M, Smith AL, Hardikar W. Health-related quality of life in children with hepatitis C acquired in the first year of life. J Gastroenterol Hepatol, 2008; 23(2): 226-30.
  387. O'Byrne ML, Mercer-Rosa L, Zhao H, Zhang X, Yang W, Tanel RE, Marino BS, Cassedy A, Fogel MA, Rychik J, Paridon S, and Goldmuntz E. Morbidity in Children and Adolescents Following Surgical Correction of Interrupted Aortic Arch. Pediatr Cardiol. 2014 March ; 35(3): 386–392. doi:10.1007/s00246-013-0788-z.
  388. Odberg MD, Elgen IB. Low birth weight young adults: quality of life, academic achievements and social functioning. Acta Paediatr. 2011 Feb;100(2):284-8. doi: 10.1111/j.1651-2227.2010.02096.x.
  389. Oliveira S, Ravelli A, Pistorio A, Castell E, Malattia C, Prieur AM, Saad-Magalhaes, Murray KJ, Sang-Cheol B, Joos R, Foeldvari I, Duarte-Salazar C, Wulffraat N, Lahdenne P, Dolezalova P, de Inocencio J, Kanakoudi-Tsakalidou F, Hofer M, Nikishina I, Ozdogan H, Hashkes PJ, Landgraf JM, Martini A, Ruperto N. for PRINTO. Proxy-reported health-related quality of life of patients with Juvenile Idiopathic Arthritis: The pediatric rhematology internation trials organization multinational quality of life cohort study. Arthritis & Rheumatism 2007(Arthritis Care & Research);57(1):35-43.
  390. Olsen BT, Ganocy SJ, Bitter SM, Findling RL, Case M, Chang K, Tohen M, DelBello MP. Health-related quality of life as measured by the child health questionnaire in adolescents with bipolar disorder treated with olanzapine. Compr Psychiatry. 2012 Oct;53(7):1000-5. doi: 10.1016/j.comppsych.2012.03.010. Epub 2012 Apr 18. Compr Psychiatry. 2012 Oct;53(7):1000-5. doi: 10.1016/j.comppsych.2012.03.010. Epub 2012 Apr 18.
  391. Oostenbrink R, Jansingh-Piepers EM, Raat H, Nuijsink M, Landgraf JM, Essink-Bot ML, Moll HA. Health related quality of life of pre-school children with wheezing illness. Pediatr Pulmonol 2006;41(993-1000). DOI 10.1002/ppul.20486.
  392. Oostenbrink R, Jongman H, Landgraf JM, Raat H, Moll HA. Functional abdominal complaints in pre-school children: parental reports of health related quality of life. Quality of Life Research (Accepted 28 December 2009). 0962-9343 (Print) 1573-2649 (Online) Issue Volume 19, Number 3 / April, 2010 DOI 10.1007/s11136-009-9583-y Pages 363-369
  393. Oostenbrink R, Spong K, de Goede-Bolder A, Landgraf JM, Raat H, Moll HA. Health-related quality of life in a sample of young children with neurofibromatosis type 1: influence of condition specific determinants. J Pediatr 2007:151:182-6. Published Online: 10.1016/j.jpeds.2007.03.005.
  394. Orban I, Ruperto N, Balogh Z, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Hungarian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S81-S85.
  395. Ostblom E, Egmar AC, Gardulf A, Lilja G, Wickman M. The impact of food hypersensitivity reported in 9-year-old children by their parents on health-related quality of life. Allergy 2008;63(2):211-8.
  396. Otley A, Smith C, Nicholas D, Munk M, Avolio J, Sherman PM, Griffiths AM. The IMPACT questionnaire: a valid measure of health-related quality of life in pediatric inflammatory bowel disease. J Pediatr Gastroenterol Nutr. 2002 Oct;35(4):557-63.
  397. Ozdogan H, Ruperto N, Kasapçopur O, Bakkaloglu A, Arisoy N, Ozen S, Ugurlu Ű, Unsal E, Melikoglu M, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Turkish version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S158-S162.
  398. Paediatric Rheumatology International Trials Organisation. Quality of life in juvenile rheumatoid arthritis patients compared to healthy children. Clinical and Experimental Rheumatology 2001;19(4):S23.
  399. Pagava K, Ruperto N, Shalamberidze L, Mshvidobadze N, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Georgian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S66-S70.
  400. Palermo T.M., Schwartz L., Drotar D., & McGowan K. Parental Report of Health-Related Quality of Life in Children with Sickle Cell Disease. Journal of Behavioral Medicine 2002;25(3):269-283.
  401. Panepinto JA, O'Mahar KM, Debaun MR, Loberiza FR, Scott JP. Health-related quality of life in children with sickle cell disease:child and parent perception. Br J Haematol, 2005;130(3):437-44.
  402. Panepinto JA., O'Mahar KM., De Baun MR., Rennie KM., & Scott JP. Validity of the Child Health Questionnaire for use in children with sickle cell disease. J Pediatr Hematol Oncol 2004;26(9):574-8.
  403. Pasquet M, Pellier I, Aladjidi N, Auvrignon A, Cherin P, Clerson P, Cozon GJN, Jaussaud R, Bienvenu B, Hoarau C. A cohort of French pediatric patients with primary immunodeficiencies: are patient preferences regarding replacement immunotherapy fulfilled in real-life conditions? Patient Prefer Adherence. 2017 Jul 10;11:1171-1180. doi: 10.2147/PPA.S123363. eCollection 2017.
  404. Pasquet M, Pellier I, Aladjidi N, Auvrignon A, Cherin P, Clerson P, Cozon GJN, Jaussaud R, Bienvenu B, Hoarau C. A cohort of French pediatric patients with primary immunodeficiencies: are patient preferences regarding replacement immunotherapy fulfilled in real-life conditions? Patient Prefer Adherence. 2017 Jul 10;11:1171-1180. doi: 10.2147/PPA.S123363. eCollection 2017.
  405. Peña R, Suman OE, Rosenberg M, Andersen CR, Herndon DN, Meyer WJ. A 1 year comparison of a Community Based Exercise Program versus a Day-Hospital based exercise program on Quality of Life and Mental Health in Severely Burned Children. Arch Phys Med Rehabil. 2017 Nov 25. pii: S0003-9993(17)31384-9. doi: 10.1016/j.apmr.2017.10.023. [Epub ahead of print]
  406. Peetsold MG, Huisman J, Hofman VE, Heij HA, Raat H, Gemke RJ. Psychological outcome and quality of life in children born with congenital diaphragmatic hernia. Arch Dis Child. 2009 Nov;94(11):834-40. Epub 2009 Jun 15.
  407. Pelkonen P, Ruperto N, Honkanen V, Hannula S, Savolainen A, Lahdenne P, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Finnish version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S55-S59.
  408. Pencharz J., Young N.L., Owen J.L., & Wright J.G. Comparison of three outcomes instruments in children. Journal of Pediatric Orthopedics 2001;21(4):425-432.
  409. Perwien A, Faries DE, Kratochvil CJ, Summer CR, Kelsey DK, Allen AJ. Improvement in health-related quality of life in children with ADHD: an analysis of placebo controlled studies of atomoxetine. J Dev Behav Pediatr,2004;25(4):264-71.
  410. Perwien AR , Kratochvill CJ, Faries DE, Vaughan BS, Spencer T, Brown RT. Atomoxetine treatment in children and adolescents with attention-deficit hyperactivity disorder: what are the long-term health-related quality of life outcomes? J Child Adolesc Psychopharmacol, 2006; 16(6):713-24.
  411. Perwien AR, Bennett Johnson S, Silverstein JH. Quality of life assessment in youth with Type 1 Diabetes: Use of a brief generic measure. Quality of Life Research 2000;9(3):281 (abstract #1584).
  412. Peshko D, Titova E, Korsunskiy I, Kondrikova E, Pulvirenti F, Quinti I, Blyuss O, Galvin AD, Munblit D. Health-Related Quality of Life in Children and Adults with Primary Immunodeficiencies: A Systematic Review and Meta-analysis. J Allergy Clin Immunol Pract. 2019 Feb 20. pii: S2213-2198(19)30179-5. doi: 10.1016/j.jaip.2019.02.013. [Epub ahead of print]
  413. Petersson C, Simeonsson RJ, Enskar K, Huus K. Comparing children's self-report instruments for health-related quality of life using the International Classification of Functioning, Disability and Health for Children and Youth (ICF-CY). Health Qual Life Outcomes. 2013 May 4;11:75. doi: 10.1186/1477-7525-11-75.
  414. Ping D, Bergamasco A, Moride Y, Truong Berthoz F, , Gülden Özen G, Tzivelekis S. Von Willebrand Disease Epidemiology, Burden of Illness and Management: A Systematic Review. Journal of Blood Medicine 2023:14 189–208. https://doi.org/10.2147/JBM.S389241
  415. Pirpiris M & Graham HK. Uptime in children with cerebral palsy. J Ped Ortho 2004;24(5):521-528.
  416. Polgreen LE, Vehe RK, Rudser K, Kunin-Batson A, Utz JJ, Dickson P, Shapiro E, Whitley CB. Elevated TNF-α is associated with pain and physical disability in mucopolysaccharidosis types I, II, and VI. Mol Genet Metab. 2016 Apr;117(4):427-30. doi: 10.1016/j.ymgme.2016.01.012. Epub 2016 Jan 28.
  417. Polinder S1, Haagsma JA, van Klaveren D, Steyerberg EW, van Beeck EF. Health-related quality of life after TBI: a systematic review of study design, instruments, measurement properties, and outcome. Popul Health Metr. 2015 Feb 17;13:4. doi: 10.1186/s12963-015-0037-1. eCollection 2015.
  418. Pouchot J, Ruperto N, Lemelle I, Sommelet D, Grouteau E, David L, Duquesne A, Deslandre Job C, Paut Kone I, Pillet P, Goumy L, Barbier C, Guyot MH, Mazingue, Gandon Laloum S, Fischbach M, Quartier P, Guyot C, Jean S, Le Gall E, Plouvier E, Bost M, de Lumley L, LePlège A, Larbre JP, Guillemin F, Coste J, Landgraf JM, Prieur AM, for the Paediatric Rheumatology International Trials Organization (PRINTO). The French version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S60-S65.
  419. Powers P, Abetz LN, Landgraf J. Adolescent with cystic fibrosis: Mother, father and child reports of health. Paper presented at the 104th Annual Convention of the American Psychological Association, Toronto, Canada. August 1996.
  420. Powers P. Fathers' perceptions of health and functional status in adolescents with cystic fibrosis. Paper presented at the Great Lakes Regional Pediatric Psychology Conference, Toronto, Canada. April 1996.
  421. Powers PM, Gerstel R,Lapey A. Adolescents with cystic fibrosis: family reports of adolescent health-related quality of life and forced expiratory volume in one second. Pediatrics, 2001;107(5):E70.
  422. Prasad John Thottam, Jeffrey P Simons, Sukgi Choi, Raymond Maguire, Deepak K Mehta. Clinical relevance of quality of life in laryngomalacia. Laryngoscope 2016 May;126(5):1232-5. doi: 10.1002/lary.25491. Epub 2015 Jul 30.
  423. Prasad M, Hicks R, MacKay M, Nguyen CT, Campbell C. Developmental Milestones and Quality of Life Assessment in a Congenital Myotonic Dystrophy Cohort. J Neuromuscul Dis. 2016 Aug 30;3(3):405-412.
  424. Pratsidou-Gertsi P, Vougiouka O, Tsitsami E, Ruperto N, Siamopoulou-Mavridou A, Dracou C, Daskas I, Trachana M, Alaleou V, Kanakoudi-Tsakalidou, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Greek version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S76--S80.
  425. Prince FH, Geerdink LM, Borsboom GJ, Twilt M, Van Rossum MA, Hopppenreijs EP, Ten Cate R, Koopman-Keemink Y, van Santen-Hoeufft M, Raat H, van Suijlekom-Smit LW. Major improvements in Health-Related Quality of Life during the use of etanercept in patients with previously refractory Juvenile Idiopathic Arthritis. Ann Rheum Dis. 2009 Jul 5. [Epub ahead of print]PMID: 19581280 [PubMed - as supplied by publisher]
  426. Pullens B, Dulfer K, Buysse CM, Hoeve LJ, Timmerman MK, Joosten KF. Long-term quality of life in children after open airway surgery for laryngotracheal stenosis. Int J Pediatr Otorhinolaryngol. 2016 May;84:88-93. doi: 10.1016/j.ijporl.2016.02.008. Epub 2016 Mar 4.
  427. Pullens B, Pijnenburg MW, Hoeve HJ, Baatenburg de Jong RJ, Buysse CM, Timmerman MK, van der Schroeff MP, Joosten KF. Long-term functional airway assessment after open airway surgery for laryngotracheal stenosis. Laryngoscope. 2015 Jun 24. doi: 10.1002/lary.25419. [Epub ahead of print]
  428. Raat H, Bonsel GJ, Essink-Bot ML, Landgraf JM, Gemke RJ. Reliability and validity of comprehensive health status measures in children; The Child Health Questionnaire in relation to the Health Utilities Index . Journal of Clinical Epidemiology 2002:55(1):67-76.
  429. Raat H, Botterweck AM, Landgraf JM Hoogeveen WC. Reliability and validity of the short form of the Child Health Questionnaire for Parents (CHQ-PF28) in large random school-based and general population samples. J Epidemiol Community Health 2005;59:75-82.
  430. Raat H, Essink-Bot ML, Landgraf JM. Reliability and discriminant validity of The Child Health Questionnaire 28-Item parent form (CHQ-PF28) as pediatric generic health status measure. Quality of Life Research 2001;10(3):268 (abstract #303).
  431. Raat H, Kloek G, Landgraf JM. Does caregiver health status affect proxy ratings of health related quality of life in preschool children with and without respiratory symptoms. Presentation at the Annual Meeting of the International Society for Quality of Life Research, Toronto Canada, October 2007.
  432. Raat H, Landgraf JM, Bonsel GJ, Gemke RJ, Essink-Bot ML. Reliability and validity of the Child Health Questionnaire-Child Form (CHQ-CF87) in a Dutch adolescent population. Quality of Life Research 2002;11(6):575-581.
  433. Raat H, Landgraf JM, Oostenbrink R, Moll HA, Essink-Bot ML. Reliability and validity of the Infant Toddler Quality of Life Questionnaire (ITQOL) in a general population and respiratory disease sample. Quality of Life Research, 2007;16:445-460. DO1 10.1007/s11136-006-9134-8 (2006).
  434. Raat H, Mangunkusumo RT, Landgraf JM, Kloek G, Brug J. Feasibility, reliability and validity of adolescent health status measurement by the Child Health Questionnaire Child Form (CHQ-CF): internet administration compared with standard paper version. Qual Life Res; 2007:16:675-685. DOI 10.1007/s11136-006-9157-1
  435. Raat H, Mohangoo AD, Grootenhuis MA. Pediatric health-related quality of life questionnaires in clinical trials. Curr Opin Allergy Clin Immunol, 2006;6(3):180-5.
  436. Raat H, Mohangoo AD, Landgraf JM. The association between smoking status and health-related quality of life in a population of adolescents (13-17 years) as measured by The Child Health Questionnaire (CHQ-CF87). Abstract Presentation (1210) at the Annual Meeting of the International Society for Quality of Life Research, Toronto Canada, October 2007.
  437. Raat H, van Rossem L, Jaddoe VMV, Landgraf JM, Feeny D, Moll HA, Hofman A, and Mackenbach JP. Generation R study: a candidate gene study and genome-wide association study (GWAS) on health-related quality of life (HRQOL) of mothers and young children. Qual Life Res 2010 ahead of print DOI 10.1007/s11136-010-9773-7.
  438. Rademacher J, DelBello MP, Adler C, Stanford K, Strakowski SM. Health-related quality of life in adolescents with bipolar I disorder. J Child Adolesc Psychopharmacol. 2007 Feb;17(1):97-103.
  439. Raluy-Callado M, Chen WH, Whiteman DA, Fang J, Wiklund I. The impact of Hunter syndrome (mucopolysaccharidosis type II) on health-related quality of life.Orphanet J Rare Dis. 2013 Jul 10;8(1):101. [Epub ahead of print]. PMID: 23837440.
  440. Ramstad K, Jahnsen R, Skjeldal OH, Diseth TH. Mental health, health related quality of life and recurrent musculoskeletal pain in children with cerebral palsy 8-18 years old. Disabil Rehabil. 2012;34(19):1589-95. Epub 2012 Feb 22.
  441. Regnault A, Burlina A, Cunningham A, Bettiol E, Moreau-Stucker F, Benmedjahed K, Bosch AM. Development and psychometric validation of measures to assess the impact of phenylketonuria and its dietary treatment on patients' and parents' quality of life: the phenylketonuria - quality of life (PKU-QOL) questionnaires. Orphanet J Rare Dis. 2015 May 10;10(1):59. doi: 10.1186/s13023-015-0261-6.
  442. Rendeli C, Ausili E, Tabacco F, Caliandro P, April I, Tonali P, Salvaggio E, Padua L. Assessment of health status in children with spina bifida. Spinal Cord. 2005 Apr;43(4):230-5.
  443. Rentz AM, Matza LS, Secnik K, Swensen A and Revicki DA. Psychometric validation of the child health questionnaire(CHQ) in a sample of children and adolescents with attention-deficit/hyperactivity disorder. Quality of Life Research 2005;14(3):719-734.
  444. Resch B, Mühlanger A, Maurer-Fellbaum U, Pichler-Stachl E, Resch E, Urlesberger B Quality of Life of Children with Cystic Periventricular Leukomalacia - A Prospective Analysis with the Child Health Questionnaire-Parent Form 50. Front Pediatr. 2016 May 17;4:50. doi: 10.3389/fped.2016.00050. eCollection 2016..
  445. Rey JM, Sawyer MG, Raphael B, Patton GC, Lynskey M. Mental health of teenagers who use cannabis: Results of an Australian survey. British Journal of Psychiatry 2002;180(3):216-221.
  446. Rider LG, Werth VP, Huber AM, Alexanderson H, Rao AP, Ruperto N, Herbelin L, Barohn R, Isenberg D, Miller FW. Measures of adult and juvenile dermatomyositis, polymyositis, and inclusion body myositis: Physician and Patient/Parent Global Activity, Manual Muscle Testing (MMT), Health Assessment Questionnaire (HAQ)/Childhood Health Assessment Questionnaire (C-HAQ), Childhood Myositis Assessment Scale (CMAS), Myositis Disease Activity Assessment Tool (MDAAT), Disease Activity Score (DAS), Short Form 36 (SF-36), Child Health Questionnaire (CHQ), physician global damage, Myositis Damage Index (MDI), Quantitative Muscle Testing (QMT), Myositis Functional Index-2 (FI-2), Myositis Activities Profile (MAP), Inclusion Body Myositis Functional Rating Scale (IBMFRS), Cutaneous Dermatomyositis Disease Area and Severity Index (CDASI), Cutaneous Assessment Tool (CAT), Dermatomyositis Skin Severity Index (DSSI), Skindex, and Dermatology Life Quality Index (DLQI). Arthritis Care Res (Hoboken). 2011 Nov;63 Suppl 11:S118-57. doi: 10.1002/acr.20532. Review. No abstract available. PMID: 22588740 [PubMed - indexed for MEDLINE]
  447. Robert E. Boykin, MD, Eric D. McFeely, BA, Dave Shearer, MD, Jeremy S. Frank, MD, Christopher C. Harrod, MD, Adam Y. Nasreddine, MA, Mininder S. Kocher, MD, MPH. Correlation between the Child Health Questionnaire and the International Knee Documentation Committee score in pediatric and adolescent patients with an anterior cruciate ligament tear. Jan 2012 Orthopedic Journal Harvard Medical School.
  448. Roberts G, Anderson PJ, Cheong J, Doyle LW; Victorian Infant Collaborative Study Group. Parent-reported health in extremely preterm and extremely low-birthweight children at age 8 years compared with comparison children born at term. Dev Med Child Neurol. 2011 Oct;53(10):927-32. doi: 10.1111/j.1469-8749.2011.04025.x. Epub 2011 Jul 11.
  449. Roberts YH1, Ferguson M, Crusto CA. Exposure to traumatic events and health-related quality of life in preschool-aged children. Qual Life Res. 2013 Oct;22(8):2159-68. doi: 10.1007/s11136-012-0330-4. Epub 2012 Dec 7.
  450. Rodary C, Bellon N, Landgraf JM, Kalifa C, Baruchel, Qunintana E. The Child Health Questionnaire (CHQ): comparison of the quality of life (qol) scores obtained by the parent report (PF50) and the self-report (CF87). Quality of Life Research,2001;10(3):216 (abstract #93).
  451. Rodary C, Bellon N, Landgraf JM., Kalifa C, Chastagner P, Vannier JP. Validation in French of The Child Health Questionnaire Parent Form (CHQ-PF50) in children aged 9-19 years suffering from cancer. Quality of Life Research 2001;10(3):268 (abstract #300).
  452. Rodary C, Landgraf JM, Kalifa C, Lerveger G, Gentet JC. Ability of the Child Health Questionnaire (CHQ-CF87) to detect differences in quality of life (QOL) between children according to type of cancer. Quality of Life Research 2000;9(3):266 (abstract #1509).
  453. Rodary C, Pezet-Langevin V, Kalifa C. Quality of life in children: what is a good evaluation tool? Arch Pediatr, 2001;8(7):744-50.
  454. Rodary C., LePlège A., Kalifka, C., & Bernard J.L. Adaptation in French of the Child Health Questionnaire (CHQ) and validation in children 10-18 years of age. Paper presented at the Ninth Annual Meeting of the International Association for Quality of Life Research, Vienna, Austria. November 1997.
  455. Rodrigue JR, Geffken GR, Streisand RM. (Eds.) (2000). Child health assessment: A handbook of measurement techniques. Needham Heights, MA: Allyn and Bacon.
  456. Rolfsjord LB, Skjerven HO, Bakkeheim E, Berents TL, Carlsen KH, Carlsen KCL. Quality of life, salivary cortisol and atopic diseases in young children. PLoS One. 2019 Aug 30;14(8):e0214040. doi: 10.1371/journal.pone.0214040. eCollection 2019.
  457. Rolfsjord LB, Skjerven HO, Bakkeheim E, Løvold Berents TL, Carlsen KH, Lødrup Carlsen KC. Quality of life, salivary cortisol and atopic diseases in young children. bioRxiv preprint first posted online Mar. 8, 2019 doi: https://doi.org/10.1101/570960.
  458. Rolfsjord LB, Skjerven HO, Carlsen KH, Mowinckel P, Bains KE, Bakkeheim E, Lødrup Carlsen KC. The severity of acute bronchiolitis in infants was associated with quality of life nine months later. Acta Paediatr. 2016 Mar 11. doi: 10.1111/apa.13396. [Epub ahead of print]
  459. Rolfsjord LB1, Skjerven HO, Bakkeheim E, Carlsen KH, Hunderi JO, Kvenshagen BK, Mowinckel P, Lødrup Carlsen KC. Children hospitalised with bronchiolitis in the first year of life have a lower quality of life nine months later. Acta Paediatr. 2014 Aug 28. doi: 10.1111/apa.12792. [Epub ahead of print]
  460. Romicka AM, Ruperto N, Gutowska-Grzegorczyk G, Musiej-Nowakowska E, Wyszynska E,for the Paediatric Rheumatology International Trials Organization (PRINTO). The Polish version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S121-S125.
  461. Rosen CL, Palermo TM, Larkin EK, Redline S. Health-related quality of life and sleep-disordered breathing in children. Sleep 2002;25(6):657-666.
  462. Rosenberg M, Celis MM, Meyer W 3rd, Tropez-Arceneaux L, McEntire SJ, Fuchs H, Richardson L, Holzer C 3rd, Herndon DN, Suman OE. Effects of a hospital based Wellness and Exercise program on quality of life of children with severe burns. Burns. 2013 Jun;39(4):599-609. doi: 10.1016/j.burns.2012.08.019. Epub 2012 Sep 15. PMID: 22985974 [PubMed - in process]
  463. Ross SC, Strachan J, Russell RK, Wilson SL. Psychosocial functioning and health-related quality of life in paediatric inflammatory bowel disease. J Pediatr Gastroenterol Nutr. 2011 Nov;53(5):480-8. doi: 10.1097/MPG.0b013e31822f2c32. PMID: 21822149
  464. Rumba I, Ruperto N, Bikis E, Remberga S, Saulite I, Plotkina, Viksna A, Krauca M, Breca I, Vikmanis U, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Latvian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S101-S105.
  465. Ruperto N, Ravelli A, Pistorio A, Mallatia C, Cavuto S, Gado-West L, Landgraf JM. Cross-cultural adaptation and psychometric evaluation of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ) in 32 countries. Review of the general methodology. Clin Exp Rheumatol 2001; 19 (Suppl.23)S1-S9.
  466. Ruperto N, Buratti S, Duarte-Salazar, Pistorio A, Reiff A, Bernstein B, Maldanado-velAizquez MR, Beristain-Manterola R, Maeno N, Takei S, Falcini F, Lepore L, Spencer CH, Pratsidou-Gertsi P, Martini A, Ravelli A. Health-related quality of life in juvenile-onset systemic lupus erythematosus and its relationship to disease activity and damage. Arthritis Rheum, 2004;51(3): 458-64.
  467. Ruperto N, Lovell DJ, Li T, Sztajnbok F, Goldenstein-Schainberg C, Scheinberg M, Penades IC, Fischbach M, Alcala JO, Hashkes PJ, Hom C, Jung L, Lepore L, Oliveira S, Wallace C, Alessio M, Quartier P, Cortis E, Eberhard A, Simonini G, Lemelle I, Chalom EC, Sigal LH, Block A, Covucci A, Nys M, Martini A, Giannini EH; Paediatric Rheumatology International Trials Organisation (PRINTO); Pediatric Rheumatology Collaborative Study Group (PRCSG). Abatacept improves health-related quality of life, pain, sleep quality, and daily participation in subjects with juvenile idiopathic arthritis. Arthritis Care Res (Hoboken). 2010 Nov;62(11):1542-51. doi: 10.1002/acr.20283. Epub 2010 Jul 1.
  468. Ruperto N, Lovell DJ, Quartier P, Paz E, Rubio-Pérez N, Silva CA, Abud-Mendoza C, Burgos-Vargas R, Gerloni V, Melo-Gomes JA, Saad-Magalhães C, Sztajnbok F, Goldenstein-Schainberg C, Scheinberg M, Penades IC, Fischbach M, Orozco J, Hashkes PJ, Hom C, Jung L, Lepore L, Oliveira S, Wallace CA, Sigal LH, Block AJ, Covucci A, Martini A, Giannini EH; Paediatric Rheumatology INternational Trials Organization; Pediatric Rheumatology Collaborative Study Group. Abatacept in children with juvenile idiopathic arthritis: a randomized, double-blind, placebo-controlled withdrawal trial. Lancet. 2008 Aug 2;372(9636):348-50. PMID: 18632147
  469. Ruperto N, Lovell DJ, Quartier P, Paz E, Rubio-Perez N, Silva CA, et al. Long-term safety and efficacy of abatacept in children with juvenile idiopathic arthritis. Arthritis Rheum 2010;62:1792-802.
  470. Ruperto N, Malattia C, Bartoli M, Trail L, Pistorio A, Martini A, Ravelli A. Functional ability and physical and psychosocial well-being of hypermobile schoolchildren. Clin Exp Rheumatol,2004;22(4):495-8
  471. Ruperto N, Murray KJ, Gerloni V, Wulffraat N, de Oliveira SK, Falcini F, Dolezalova P, Alessio M, Burgos-Vargas R, Corona F, Vesely R, Foster H, Davidson J, Zulian F, Asplin L, Baildam E, Consuegra JG, Ozdogan H, Saurenmann R, Joos R, Pistorio A, Woo P, Martini A; Pediatric Rheumatology International Trials Organization. A randomized trial of parenteral methotrexate comparing an intermediate dose with a higher dose in children with juvenile idiopathic arthritis who failed to respond to standard doses of methotrexate. Arthritis Rheum. 2004 Jul;50(7):2191-201.
  472. Ruperto N, Pistorio A, Oliveira S, Zulian 4, Cuttica 5, Ravelli 6, Fischbach 7, Magnusson B, Sterba G, Avcin T, Brochard K, Corona F, Dressler F, Gerloni V, Apaz MT, Bracaglia C, Cespedes-Cruz A, Cimaz R, Couillault G, Joos R, Quartier P, Russo R, Tardieu M, Wulffraat N, Bica B, Dolezalova P, Ferriani V, Flato B, Bernard-Medina AG, Herlin T, Trachana M, Meini A, Allain-Launay E, Pilkington C, Vargova V, Wouters C, Angioloni S, Martini A; Paediatric Rheumatology International Trials Organisation (PRINTO). Prednisone versus prednisone plus ciclosporin versus prednisone plus methotrexate in new-onset juvenile dermatomyositis: a randomised trial. Lancet. 2016 Feb 13;387(10019):671-8. doi: 10.1016/S0140-6736(15)01021-1. Epub 2015 Nov 30.
  473. Ruperto N, Ravelli A, Cuttica R, Espada G, Ozen S, Porras O, Sztanjbok F, Falini F, Kasapcopur O, Venning H, Bica B, Merino R, Coto C, Roas J, Susic G, Gamir ML, Minden K, See Y, Uziel Y, Mukamel M, Riley P, Zulian F, Olivieri AN, Cimaz R, Girschick H, Rumba I, Cavuto S, Pistrio A, Lovell DJ, Martini A, for the Pediatric Rheumatology International Trials Organization (PRINTO) and the Pediatric Rheumatology Collaborative Study Group (PRCSG). The PRINTO Criteria for the evaluation of response to therapy in juvenile systemic lupus erythematosus: prospective validation of the disease activity core set. Arthritis & Rhem 2005;52(9):2854-64.
  474. Ruperto N, Ravelli A, Oliveira S, Alessio M, Mihaylova D, Pasic S, Cortis E, Apaz M, Burgos-Vargas R, Kanakoudi-Tsakalidou F, Norambuena X, Corona F, Gerloni V, Hagleberg S, Aggarwal A, Dolezalova P, Saad C, Bae SC, Vesely R, Avcin T, Foster H, Duarte H, Herlin T, Horneff G, Lepore L, Van Rossum M, Trail L, Pistrio A, Andersson-Gäre B, Giannini EH, Martini A for PRINTO and PRCSG. The PRINTO/American College of Rheumatology provisional criteria for the evaluation of response to therapy in juvenile system lupus erythematosus: prospective validation of the definition of improvement. Arthritis & Rheumatism, 2006;55(3):355-63.
  475. Ruperto N, Ravelli A, Pistorio A, Ferriani V, Calvo I, Ganser G, Brunner J, Dannecker G, Silva CA, Stanevicha V, Cate RT, van Suijlekom-Smit LW, Voygioyka O, Fischbach M, Foeldvari I, Hilario O, Modesto C, Saurenmann RK, Sauvain MJ, Scheibel I, Sommelet D, Tambic-Bukovac L, Barcellona R, Brik R, Ehl S, Jovanovic M, Rovensky J, Bagnasco F, Lovell DJ, Martini A; Paediatric Rheumatology International Trials Organisation (PRINTO); Pediatric Rheumatology Collaborative Study Group (PRCSG). The provisional Paediatric Rheumatology International Trials Organisation/American College of Rheumatology/European League Against Rheumatism Disease activity core set for the evaluation of response to therapy in juvenile dermatomyositis: a prospective validation study. Arthritis Rheum. 2008 Jan 15;59(1):4-13.
  476. Ruperto N, Ravelli A, Pistorio A, Malattia C, Viola S, Cavuto S, Alessio M, Alpigiani MG, Buoncompagni A, Corona F, Cortis E, Falcini F, Gerloni V, Lepore L, Sardella ML, Strano CG, Zulian F, Gado-West L, Tortorelli A, Fantini F, Martini A, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Italian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S91-S95.
  477. Russo RA, Melo-Gomes S, Lachmann HJ, Wynne K, Rajput K, Eleftheriou D, Edelsten C, Hawkins PN, Brogan PA. Efficacy and safety of canakinumab therapy in paediatric patients with cryopyrin-associated periodic syndrome: a single-centre, real-world experience. Rheumatology (Oxford). 2014 Apr;53(4):665-70. doi: 10.1093/rheumatology/ket415. Epub 2013 Dec 17.
  478. Rutishauser C, Sawyer SM, Bowes G. Quality-of-life assessment in children and adolescents with asthma. Eur Respir J 1998;12(2):486-94.
  479. Rypdal V, Arnstad ED, Aalto K, Berntson L Ekelund M, Fasth A, Glerup M, Herlin T, Nielsen S, Peltoniemi S, Zak M, Rygg M,, Rypdal M, Nordal E; Nordic Study Group of Pediatric Rheumatology (NoSPeR). Predicting unfavorable long-term outcome in juvenile idiopathic arthritis: results from the Nordic cohort study. Arthritis Res Ther. 2018 May 3;20(1):91. doi: 10.1186/s13075-018-1571-6.
  480. Rypdal V, Arnstad ED, Aalto K, Berntson L6 Ekelund M, Fasth A, Glerup M, Herlin T, Nielsen S, Peltoniemi S, Zak M, Rygg M, Rypda, Nordal E, ; Nordic Study Group of Pediatric Rheumatology (NoSPeR). Predicting unfavorable long-term outcome in juvenile idiopathic arthritis: results from the Nordic cohort study. Arthritis Res Ther. 2018 May 3;20(1):91. doi: 10.1186/s13075-018-1571-6.
  481. Sabaz M, Lawson JA, Cairns DR, Duchowny MS, Resnick TJ, Dean PM, Bye AM. Validation of the quality of life in childhood epilepsy questionnaire in American epilepsy patients. Epilepsy Behav,2003;4(6):680-91.
  482. Samson-Fang L, Fung E, Stallings VA, Conaway M, Worley G, Rosenbaum P et. al. Relationship of nutritional status to health and societal participation in children with cerebral palsy. J Pediatrcs 2002;141(5):637-643.
  483. Sands S.A., Kellie S.J., Davidow A.L., Diez B., Villablanca J., Weiner H., Pientanza M.C., Balmaceda C., & Finlay J.L. Long-term quality of life and neuropsychologic functioning for patients with CNS germ-cell tumors: from the First International CNS Germ-Cell Tumor Study. Neuro-Oncology 2001;3:174-183.
  484. Sands SA, Pasichow KP, Weiss R, Garvin J, Gardner S, Dunkel IJ, Finlay JL. Quality of life and behavioral follow-up study of Head Start I pediatric brain tumor survivors. J Neurooncol. 2011 Jan;101(2):287-95. Epub 2010 Jun 6.
  485. Sawyer M, Antoniou G, Toogood I, Rice M. A comparison of parent and adolescent reports describing the health-related quality of life of adolescents treated for cancer. International Journal of Cancer Supplement 1999;12:39-45.
  486. Sawyer M, Spurrier N, Whaites L, Kennedy D, Martin AJ, Baghurst P. (2000). The relationship between asthma severity, family functioning and health-related quality of life of children with asthma. Quality of Life Research, 9(10), 1105-1115.
  487. Sawyer MG, Arney FM, Baghurst PA, Clark JJ, Graetz BW, Kosky RJ, Nurcombe B, Patton GC, Prior MR, Raphael B, Rey JM, Whaites LC, Zubrick SR. The mental health of young people in Australia: key findings from the child and adolescent component of the national survey of mental health and well-being. Aust N Z J Psychiatry. 2001 Dec;35(6):806-14.
  488. Sawyer MG, Reynolds KE, Couper JJ, French DJ, Kennedy D, Martin J, Staugas R, Baghurst PA. A two-year prospective study of the health-related quality of life of children and adolescents with chronic illness – the parents' perspective. Quality of Life Research 2005;14(2):395-405.
  489. Sawyer MG, Reynolds KE, Couper JJ, French DJ, Kennedy D, Martin J, Staugas R, Ziaian T, Baghurst PA. Health-related quality of life of children and adolescents with chronic illness – a two year prospective study. Quality of Life Research 2004;13(7):1309-1319.
  490. Sawyer MG, Whaites L, Rey JM, Hazell PL, Graetz BW, Baghurst P. Health-related quality of life of children and adolescents with mental disorders. J Am Acad Child Adolesc Psychiatry. 2002 May;41(5):530-7.
  491. Schaeffer AJ, Yenokyan G, Alcorn K, Furth SL, Diener-West M, Wu AW, Gearhart JP, Dodson JL. Health related quality of life in adolescents with bladder exstrophy-epispadias as measured by the child health questionnaire-child form 87. J Urol. 2012 Nov;188(5):1924-9. doi: 10.1016/j.juro.2012.07.014. Epub 2012 Sep 19. PMID: 22998914 [PubMed - in process]
  492. Schiariti V1, Houbè JS, Lisonkova S, Klassen AF, Lee SK. Caregiver-reported health outcomes of preschool children born at 28 to 32 weeks' gestation. J Dev Behav Pediatr. 2007 Feb;28(1):9-15.
  493. Schlösser TP, Stadhouder A, Schimmel JJ, Lehr AM, van der Heijden GJ, Castelein RM. Reliability and validity of the adapted Dutch version of the revised Scoliosis Research Society 22-item questionnaire. Spine J. 2014 Aug 1;14(8):1663-72. doi: 10.1016/j.spinee.2013.09.046. Epub 2013 Oct 25.
  494. Schmidt LJ, Garratt AM, Fitzpatrick R. Child/parent-assessed population health outcomes measures: a structured review. Child Care, Health, and Development, 2002; 28(3):227-237.
  495. Schneider JW, Gurucharri LM, Gutierrez AL, Gaebler-Spira DJ. Health-related quality of life and functional outcome measures for children with cerebral palsy. Dev Med Child Neurol 2001;43(9):601-8.
  496. Schultz KA, Chen L, Kunin-Batson A, Chen Z, Woods WG, Gamis A, Kawashima T, Oeffinger KC, Nicholson HS, Neglia JP. Health-related Quality of Life (HR-QOL) and Chronic Health Conditions in Survivors of Childhood Acute Myeloid Leukemia (AML) with Down Syndrome (DS): A Report From the Children's Oncology Group. J Pediatr Hematol Oncol. 2017 Jan;39(1):20-25.
  497. Schwarzenberg SJ, Ling SC, Cloonan YK, Lin HS, Evon DM, Murray KF, Rodriguez-Baez N, Rosenthal P, Teckman J, Schwarz KB; Hepatitis B Research Network (HBRN). Health-Related Quality of Life in Pediatric Patients with Chronic Hepatitis B Living in the United States and Canada. J Pediatr Gastroenterol Nutr. 2017 Feb 4. doi: 10.1097/MPG.0000000000001525. [Epub ahead of print]
  498. Selvaag AM, Flato B, Lien G, Sorskaar D, Vinje O, Forre Ø. Measuring health status in early juvenile idiopathic arthritis: determinants and responsiveness of the child health questionnaire. J Rheumatol,2003;30(7):1602-10.
  499. Selvaag AM, Ruperto N, Asplin L, Rygg M, Landgraf JM, Forre Ø, Flatø B, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Norwegian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S116-S120.
  500. Shapiro A, Donfield SM, Lynn HS, Cool VA, Stehbens JA, Hunsberger SL, Tonetta S, Gomperts ED, & the Academic Achievement in Children with Hemophilia Study Group. Defining the impact of hemophilia: the academic achievement in children with hemophilia study. Pediatrics 2001;108(6):1-6.
  501. Shenoi S, Horneff G, Cidon M, Ramanan AV, Kimura Y, Quartier P, Foeldvari I, Zeft A, Lomax KG, Gregson J, Abma T, Campbell-Hill S, Weiss J, Patel D, Marinsek N, Wulffraat N. The burden of systemic juvenile idiopathic arthritis for patients and caregivers: an international survey and retrospective chart review. Clin Exp Rheumatol. 2018 Sep-Oct;36(5):920-928. Epub 2018 Mar 21.
  502. Sicherer SH, Noone SA, Muñoz-Furlong A. The impact of childhood food allergy on quality of life. Annals of Allergy, Asthma & Immunology 2001;87(6):461-464.
  503. Silva CH, Silva TE, Morales NM, Fernandes KP, Pinto RM. Quality of life in children and adolescents with allergic rhinitis. Braz J Otorhinolaryngol. 2009 Sep-Oct;75(5):642-9.
  504. Sleeper LA, Towbin JA, Colan SD, Hsu D, Orav EJ, Lemler MS, Clunie S7, Messere J Fountain D, Miller TL, Wilkinson JD, Lipshultz SE; Pediatric Cardiomyopathy Registry Investigators; Pediatric Cardiomyopathy Registry Investigators. Health-Related Quality of Life and Functional Status Are Associated with Cardiac Status and Clinical Outcome in Children with Cardiomyopathy. J Pediatr. 2016 Mar;170:173-180.e4. doi: 10.1016/j.jpeds.2015.10.004. Epub 2015 Dec 22.
  505. Smith CB, Walker K, Badawi N, Waters KA, MacLean JE. Impact of sleep and breathing in infancy on outcomes at three years of age for children with cleft lip and/or palate. Sleep. 2014 May 1;37(5):919-25. doi: 10.5665/sleep.3660.
  506. Solans M, Pane S, Dolors Estrada M, Serra-Sutton V, Berra S, Herdman, M, Alonso, J and Rajmil, L. Health-Related Quality of Life Measurement in Children and Adolescents: A Systematic Review of Generic and Disease-Specific Instruments. Value in Health 2008, 11: 4. pp742-764.
  507. Souza JG1, Pamponet MA1, Souza TC2, Pereira AR3, Souza AG3, Martins AM3. Tools used for evaluation of Brazilian children's quality of life. Rev Paul Pediatr. 2014 Jun;32(2):272-8.
  508. Speechley KN, Ferro MA, Camfield CS, Huang W, Levin SD, Smith ML, Wiebe S, Zou G. Quality of life in children with new-onset epilepsy: a 2-year prospective cohort study. Neurology. 2012 Oct 9;79(15):1548-55. doi: 10.1212/WNL.0b013e31826e25aa. Epub 2012 Sep 26. PMID: 23019268 [PubMed - in process]
  509. Spencer TJ, Landgraf JM, Adler L, Weisler RH, Anderson CS, Youcha SH. Attention-Deficit/Hyperactivity Disorder-Specific Quality of Life With Triple-Bead Mixed Amphetamine Salts (SPD465) in Adults:results of a randomized, double-blind, placebo controlled study. J Clin Psychiatry. 2008 Nov;69(11):1766-75. Epub 2008 Nov 4.
  510. Speyer E, Herbinet A, Vuillemin A, Chastagner P, Briançon S. Agreement between children with cancer and their parents in reporting the child's health-related quality of life during a stay at the hospital and at home. Child Care Health Dev. 2009 Jul;35(4):489-95. doi: 10.1111/j.1365-2214.2009.00972.x.
  511. Spuijbroek AT, Oostenbrink, R, Landgraf, JM, Rietveld E, de Goede A, van Beeck, van Baar, M, Raat H, Moll H. Health related quality of life in preschool children in five health conditions. Qual Life Res, 2011;20:779-786. DOI 10.1007/s11136-010-9806-2.
  512. Spurrier NJ, Sawyer MG, Clark JJ, Baghurst P. Socio-economic differentials in the health-related quality of life of Australian children: results of a national study. Aust N Z J Public Health,2003;27(1):27-33.
  513. Srivastava R, Downy EC, Feola P, Samore M, Coburn L, Holubkov R, Mundorff M, Nkoy F, Desrochers D, James BC, Rosenbaum P, Young PC, Dean JM, O'Gorman M. Quality of life of children with neurological impairment who receive a fundoplication for gastroesophageal reflux disease. J Hosp Med, 2007;2(3):165-73.
  514. Stöberl AS, Gaisl T, Giunta C, Sievi NA, Singer F, Möller A, Rohrbach M, Kohler M. Obstructive Sleep Apnoea in Children and Adolescents with Ehlers-Danlos Syndrome. Respiration. 2018 Nov 28:1-8. doi: 10.1159/000494328. [Epub ahead of print]
  515. Stancin T, Drotar D, Taylor HG, Yeates KO, Wade SL, Minich NM. Health-related quality of life of children and adolescents after traumatic brain injury. Pediatrics. 2002 Feb;109(2):E34.
  516. Stephenson EA, Lu M, Berul CI, Etheridge SP, Idriss SF, Margossian R, Reed JH, Prakash A, Sleeper LA, Vetter VL, Blaufox AD; Pediatric Heart Network Investigators. Arrhythmias in a contemporary fontan cohort: prevalence and clinical associations in a multicenter cross-sectional study. J Am Coll Cardiol. 2010 Sep 7;56(11):890-6.doi: 10.1016/j.jacc.2010.03.079
  517. Stewart M, DelBello MP, Versavel M, Keller D. Psychosocial functioning and health-related quality of life in children and adolescents treated with open-label ziprasidone for bipolar mania, schizophrenia, or schizoaffective disorder. J Child Adolesc Psychopharmacol. 2009 Dec;19(6):635-40.
  518. Stewart M.G., Friedman E.M., Sulek M., Hulka G.F., Kuppersmith R.B., Harrill W.C., & Bautista M.H. (2000). Quality of life and health status in pediatric tonsil and adenoid disease. Archives of Otolaryngology-Head & Neck Surgery 2000;126(1):45-48.
  519. Stokhuijzen E, van der Steeg AF, Nieveen van Dijkum EJ, van Santen HM, van Trotsenburg AS. Quality of life and clinical outcome after thyroid surgery in children: A 13 years single center experience. J Pediatr Surg. 2015 Mar 13. pii: S0022-3468(15)00174-8. doi: 10.1016/j.jpedsurg.2015.02.067. [Epub ahead of print]
  520. Storebø OJ, Krogh HB, Ramstad E, Moreira-Maia CR, Holmskov M, Skoog M, Nilausen TD, Magnusson FL, Zwi M, Gillies D, Rosendal S, Groth C, Rasmussen KB, Gauci D, Kirubakaran R, Forsbøl B, Simonsen E, Gluud C. Methylphenidate for attention-deficit/hyperactivity disorder in children and adolescents: Cochrane systematic review with meta-analyses and trial sequential analyses of randomised clinical trials. BMJ. 2015 Nov 25;351:h5203. doi: 10.1136/bmj.h5203.
  521. Sudan D, Horslen S, Botha J, Grant W, Torres C, Shaw B Jr, Langnas A. Quality of life after pediatric intestinal transplantation: the perception of pediatric recipients and their parents. Am J Transplant. 2004 Mar;4(3):407-13.
  522. Sullivan PW, Ghushchyan V, Navaratnam P, Friedman HS, Kavati A, Ortiz B, Lanier B. Indicators of poorly controlled asthma and health-related quality of life among school-age children in the United States. Allergy Asthma Proc. 2017 Nov 11;38(6):431-439. doi: 10.2500/aap.2017.38.4084. Epub 2017 Aug 11.
  523. Sundaram SS, Landgraf JM, Neighbors K, Cohn RA, Alonso EM. Adolescent health-related quality of life following liver and kidney transplantation. A J of Transplantation. 2007;7:982-9.
  524. Sung L, Greenberg ML, Doyle JJ, Young NL, Ingber S, Rubenstein J, Wong J, Samanta T, McLimont M, Feldman BM. Construct validation of the Health Utilities Index and the Child Health Questionnaire in children undergoing cancer chemotherapy. Br J Cancer,2003;88(8):1185-90.
  525. Sung L, Greenberg ML, Young NL, McLimont M, Ingber S, Rubenstein J, Wong J, Samanta T, Doyle JJ, Stain AM, Feldman BM. Validity of a modified standard gamble elicited from parents of a hospital-based cohort of children. Clin Epidemiol,2003;56(9):848-55.
  526. Susic G, Ruperto N, Stojanovic R, Gacic D, Pilipovic N, Pasic S, Jovanovic M, Minic A, Vukojevic P, Limic B, Djordjevic S, Milenkovic M, Plecas D, Milenkovic P, Martini A, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Serbian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S168-S172.
  527. Swensen A, Michelson D, Spencer T, Buesching D, Faries DE. Effects of Atomoxetine on Social and Family Functioning of ADHD Children and Adolescents. Presented at the 2001 American Academy of Child and Adolescent Psychiatry (AACAP) Annual Meeting, Honolulu, HI. October 2001.
  528. Szefler SJ, Carlsson LG, Uryniak T, Baker JW. Budesonide inhalation suspension versus montelukast in children aged 2 to 4 years with mild persistent asthma. J Allergy Clin Immunol Pract. 2013 Jan;1(1):58-64. doi: 10.1016/j.jaip.2012.08.005. Epub 2012 Nov 8.
  529. Takken T, Elst E, Spermon N, Helders PJ, Prakken AB, van der Net J. The physiological and physical determinants of functional ability measures in children with juvenile dermatomyositis. Rheumatology (Oxford),2003;42(4):591-5.
  530. Takken T, van Brussel M, Engelbert RH, Van der Net J, Kuis W, Helders PJ. Exercise therapy in juvenile idiopathic arthritis a Cochrane Review. Eur J Phys Rehabil Med. 2008 Sep;44(3):287-97.
  531. Takken T, van Brussel M, Engelbert RH, Van der Net J, Kuis W, Helders PJ. Exercise therapy in juvenile idiopathic arthritis. Cochrane Database Syst Rev,2008;(2): CD005954.
  532. Taylor J, Jacoby A, Baker GA, Marson AG. Self-reported and parent-reported quality of life of children and adolescents with new-onset epilepsy. Epilepsia. 2011 Aug;52(8):1489-98. doi: 10.1111/j.1528-1167.2011.03094.x. Epub 2011 May 13. PMID: 21569020
  533. Taylor R, Franck LS, Gobson F, and Dhawan A. A critical review of the health-related quality of life of children and adolescents after liver transplantation. Liver Transplantation, 2004;11(1):51-60.
  534. Taylor RM, Franck LS, Gibson F, Donaldson N, Dhawan A. Study of the factors affecting health-related quality of life in adolescents after liver transplantation. Am J Transplant. 2009 May;9(5):1179-88. PMID: 19422342 [PubMed - indexed for MEDLINE]
  535. Taylor RM, Grieve A, Gibson F, Dhawan A, Franck LS. Parental assessment of adolescent quality of life: can it replace self-assessment. Qual Life Res. 2011; 20:1715-1720. DOI 10.1007/s11136-011-9904-9
  536. Tennant A, Logan S. A Systematic Review of Generic Multidimensional Patient-Reported Outcome Measures for Children, Part I: Descriptive Characteristics. Value in Health 2015
  537. Tezcan S, Simsek TT. Comparison of health-related quality of life between children with cerebral palsy and spina bifida. Res Dev Disabil. 2013 Sep;34(9):2725-33. doi: 10.1016/j.ridd.2013.05.017. Epub 2013 Jun 19.
  538. Thomas-Stonell N, Johnson P, Rumney P, Wright V, Oddson B. An evaluation of the responsiveness of a comprehensive set of outcome measures for children and adolescents with traumatic brain injuries. Pediatr Rehabil. 2006 Jan-Mar;9(1):14-23
  539. Thomason P, Baker R, Dodd K, Taylor N, Selber P, Wolfe R, Graham HK. Single-event multilevel surgery in children with spastic diplegia: a pilot randomized controlled trial. J Bone Joint Surg Am. 2011 Mar 2;93(5):451-60. doi: 10.2106/JBJS.J.00410.
  540. Thottam PJ, Simons JP, Choi S, Maguire R, Mehta DK. Clinical relevance of quality of life in laryngomalacia. Laryngoscope. 2016 May;126(5):1232-5. doi: 10.1002/lary.25491. Epub 2015 Jul 30.
  541. Tilford JM, Aitken ME, Goodman AC, Fiser DH, Killingsworth JB, Green JW, Adelson PD. Child health-related quality of life following neurocritical care for traumatic brain injury: an analysis of preference-weighted outcomes. Neurocrit Care, 2007;7(1): 64-75.
  542. Trapanotto M, Giorgino D, Zulian F, Benini F, Varni JW. The Italian version of the PedsQL in children with rheumatic diseases. Clin Exp Rheumatol. 2009 Mar-Apr;27(2):373-80. PMID: 19473585 [PubMed - in process]
  543. Trent M, Austin SB, Rich M, Gordon CM. Overweight status of adolescent girls with polycystic ovary syndrome: body mass index as mediator of quality of life. Ambul Pediatr 2005;5(2):107-11.
  544. Trent M., Rich, M., Austin S., & Gordon C. Quality of Life in Adolescent Girls With Polycystic Ovary Syndrome. Archives of Pediatrics & Adolescent Medicine 2002;156(6): 556-560.
  545. Tüzün EH, Guven DK, Eker L. Pain prevalence and its impact on the quality of life in a sample of Turkish children with cerebral palsy. Disabil Rehabil. 2010;32(9):723-8. doi: 10.3109/09638280903295433. PMID: 20302440
  546. Ugwonali OF, Lomas G, Choe JC, Hyman JE, Lee FY, Vitale MG, Roye DP. Effect of bracing on the quality of life of adolescents with idiopathic scoliosis. Spine J, 2004;4(3):254-60.
  547. Unal VS, Gulcek M, Soydan Z, Ulcaner A, Yazici M. Assessment of quality of life in children after successful treatment of hip dysplasia as compared with normal controls. Saudi Med J,2006;27(8):1212-6.
  548. Uneri OS, Senses-Dinc G, and Zeynep Goker Z. Chapter 9: The Quality of Life (QoL) in Attention Deficit Hyperactivity Disorder (ADHD). ADHD - New Directions in Diagnosis and Treatment. Edited by Jill M. Norvilitis (Ed). 2015. IntechOpen. DOI: 10.5772/59348 ISBN: 978-953-51-2166-4, eBook (PDF) ISBN: 978-953-51-7257-4 http://dx.doi.org/10.5772/60955
  549. Upton P, Lawford J, and Eiser C. Parent–child agreement across child health-related quality of life instruments: a review of the literature. Qual Life Res (2008) 17:895–913.
  550. Uwe N, Eva O, Ann-Charlotte E, Gun N, Ann G. Validation of a Disease-Specific Questionnaire for Measuring Parent-Reported Health-Related Quality of Life in Children with Allergies. Scand J Caring Sci. 2012 Mar 16. doi: 10.1111/j.1471-6712.2012.00980.x. [Epub ahead of print]
  551. van Baar ME, Essink-Bot ML, Oen IM, Dokter J, Boxma H, Hinson MI, van Loey NE, Faber AW, van Beeck EF. Reliability and validity of the Dutch version of the American Burn Association/Shriners Hospital for Children Burn Outcomes Questionnaire (5-18 years of age). J Burn Care Res 2006;27(6):790-802.
  552. van Baar ME, Essink-Bot ML, Oen IM, Dokter J, Boxma H, Hinson MI, van Loey NE, Faber AW, van Beeck EF. Reliability and validity of the Health Outcomes Burn Questionnaire for infants and children in The Netherlands. Burns 2006;32(3):357-65.
  553. Van Damme-Ostapowicz K, Krajewska-Kułak E, Wronska I, Szczepanski M, Kulak W, Lukaszuk C, Jankowiak B, Rolka H, Baranowska A. Quality of life self-assessment of children living in a children's home, based on own research conducted in the Podlaskie Province. Adv Med Sci 2007;52 Suppl 1:44-50.
  554. van Geelen SM, Fuchs CE, van Geel R, Luyten P, van de Putte EM. The Self beyond Somatic Symptoms: A Narrative Approach to Self-Experience in Adolescent Chronic Fatigue Syndrome. Psychopathology. 2015;48(5):278-86. doi: 10.1159/000431258. Epub 2015 Sep 12.
  555. van Geelen SM1, Fuchs CE, Sinnema G, van de Putte EM, van Geel R, Hermans HJ, Kuis W. Self-investigation in adolescent chronic fatigue syndrome: narrative changes and health improvement. Patient Educ Couns. 2011 May;83(2):227-33. doi: 10.1016/j.pec.2010.05.023. Epub 2010 Jun 25.
  556. Van Grieken A, Veldhuis L, Renders CM, Landgraf JM, Hirasing HM, Raat H. Impaired parent-reported health-related quality of life of underweight and obese children at elementary school entry. Quality of Life Research, 2012: DOI 10.1007/s11136-012-0211-x.
  557. van Litsenburg R, Huisman J, Hoogerbrugge P, R. M. Egeler, Kaspers G, Gemke R. Impaired sleep affects quality of life in children during maintenance treatment for acute lymphoblastic leukemia: an exploratory study. Health and Quality of Life Outcomes 2011,April 18,9:25.
  558. van Litsenburg RR1, Huisman J, Pieters R, Verhaak C, Kaspers GJ, Gemke RJ. Determinants of quality of life during induction therapy in pediatric acute lymphoblastic leukemia. Support Care Cancer. 2014 Dec;22(12):3235-42. doi: 10.1007/s00520-014-2349-2. Epub 2014 Jul 11.
  559. Vandjelovic ND, Brown JR, Traboulsi HT, Thottam PJ. Impact of Infant Supraglottoplasty on Quality of Life. Otolaryngol Head Neck Surg. 2018 Sep;159(3):564-571. doi: 10.1177/0194599818775091. Epub 2018 May 15.
  560. Vargas-Adams J. Longitudinal use of the Child Health Questionnaire in childhood cerebral palsy. Dev Med Child Neurol, 2006;48(5): 343-7.
  561. Vargas-Adams JN. Inconsistencies with Physical Functioning and the Child Health Questionnaire in Children with Cerebral Palsy. J Pediatr 2008; April 8.epub PMID: 18534226.
  562. Vargus-Adams J. Health-related quality of life in childhood cerebral palsy. Archives Phys Med 2005;86(5):940-945.
  563. Vederhus BJ, Eide GE, Natvig GK, Markestad T, Graue M, Halvorsen T. Health-related quality of life and emotional and behavioral difficulties after extreme preterm birth: developmental trajectories. Peer J. 2015 Jan 20;3:e738. doi: 10.7717/peerj.738. eCollection 2015.
  564. Vederhus BJ, Markestad T, Eide GE, Graue M, Halvorsen T. Health related quality of life after extremely preterm birth: a matched controlled cohort study. Health Qual Life Outcomes. 2010 May 23;8:53.
  565. Vente, T. How Do you Focus on Quality of Life When Kids Cannot Go to School or Outside?. Curr Pediatr Rep (2021). https://doi.org/10.1007/s40124-021-00238-9
  566. Verstappen SM1, Cobb J, Foster HE, Fu B, Baildam E, Wedderburn LR, Davidson JE, Ioannou J, Chieng A, Hyrich KL, Thomson W. Low socio-economic status is associated with high physical limitations and low illness self-perception in patients with juvenile idiopathic arthritis: Results from the Childhood Arthritis Prospective Study (CAPS). Arthritis Care Res (Hoboken). 2014 Sep 3. doi: 10.1002/acr.22466. [Epub ahead of print]
  567. Vesely R, Ruperto N, Vargova V, Lescisinova M, Mozolova D, Koskova E, Macejkova E, Hyrdelova E, Martini A, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Slovakian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S136-S140.
  568. Vitale M.G., Roye D.P., Levy D.E., Gelijns A.C., Moskowitz A.J., & Puffingbarger W.R. An exploration of quality of life outcomes measurement in scoliosis and cerebral palsy. Pediatrics 2000;104:716.
  569. Vitale MG, Choe J, Levy DE, Gelijns AC, Moskowitz AJ, Hyman JE, Lee FY, Roye DP. (2001). Assessment of health status in patients with cerebral palsy: what is the role of quality of life measures. Quality of Life Research, 10(3), 238 (abstract #181).
  570. Vitale MG, Choe J, Levy DE, Gelijns AC, Moskowitz AJ, Hyman JE, Lee FY, Roye DP. Pediatric spine deformity: assessing patient outcomes and quality of life. Quality of Life Research 2001;10(3):201 (abstract #34).
  571. Vitale MG, Matsumoto H, Bye MR, Gomez JA, Booker WA, Hyman JE, Roye DP. A retrospective cohort study of pulmonary function, radiographic measures, and quality of life in children with congenital scoliosis: an evaluation of patient outcomes after early spinal fusion. Spine, 2008;33(11): 1242-9.
  572. Vitale MG, Matsumoto H, Roye DP, Gomez JA, Betz RR, Emans JB, Skaggs DL, Smith JT, Song KM, Campbell RM. Health-related quality of life in children with thoracic insufficiency syndrome. J Pediatr Orthop, 2008;28(2):239-43.
  573. Vitale MG, Roye EA, Choe JC, Hyman JE, Lee FY and Roye DP. Assessment of health status in patients with cerebral palsy: What is the role of quality of life measures. J Ped Ortho 2005;25(6):792-7.
  574. Vles GF, Soudant DL, Hoving MA, Vermeulen RJ, Bonouvrié LA, van Oostenbrugge RJ, Vles JS. Long-term follow-up on continuous intrathecal Baclofen therapy in non-ambulant children with intractable spastic Cerebral Palsy. Eur J Paediatr Neurol. 2013 Jul 18. pii: S1090-3798(13)00103-7. doi: 10.1016/j.ejpn.2013.06.003. [Epub ahead of print]
  575. Vojinovic J, Riley P, Maillard S, Pilkington C. Importance of aggressive treatment in juvenile dermatomyositis. Srp Arh Celok Lek, 2005;133 Suppl 2:118-23.
  576. Volger S, Estorninos EM, Capeding MR, Lebumfacil J, Radler DR, Scott Parrott J, Rothpletz-Puglia P. Health-related quality of life, temperament, and eating behavior among formula-fed infants in the Philippines: a pilot study. Health Qual Life Outcomes. 2018 Jun 8;16(1):121. doi: 10.1186/s12955-018-0944-5.
  577. Volger S, Hays NP, Northington R, Mao M, Ge J, Landgraf JM. Feasibility and Application of the Infant Toddler Quality of Life (ITQOL) in a Community-based Sample of Healthy Infants in China. Oral presentation at the 21st Annual Conference of the International Society for Quality of Life Research. October 15-18, 2014, Berlin, Germany. V23 Supplement 1 page 53.
  578. Volger S, Landgraf JM, Mao M, Ge J, Northington R, Hays NP. Feasibility and Psychometric Properties of the Infant Toddler Quality of Life (ITQOL) Questionnaire in a Community-Based Sample of Healthy Infants in China. Maternal and Child Health Journal 2018: 22(5), 702-712, https://doi.org/10.1007/s10995-018-2439-8.
  579. Wake M, Hesketh K, & Cameron F. The Child Health Questionnaire in children with diabetes: Cross-sectional survey of parent and adolescent-reported functional health status. Diabetic Medicine 2000;17(10):700-707.
  580. Wake M, Hughes EK, Collins CM, Poulakis Z. Patient-reported quality of life in children with congenital hearing loss: a population study. Ambul Pediatr, 2004; 4(5):411-7.
  581. Wake M, Salmon L, Reddihough D. Health status of Australian children with mild to severe cerebral palsy:Cross-sectional survey using the Child Health Questionnaire. Dev Med & Child Neuro 2003;45(3):194-199.
  582. Wake M, Salmon L, Waters E, Wright M, Hesketh K. Parent-reported health status of overweight and obese Australian primary school children: a cross-sectional population survey. International Journal of Obesity and Related Metabolic Disorders 2002;26(5):717-724.
  583. Walker RE, Gauvreau K, Jenkins KJ. Health-related quality of life in children attending a cardiology clinic. Pediatr Cardiol,2004;25(1):40-8.
  584. Wallace P, Barber J, Clayton W, Currell R, Fleming K, Garner P, Haines A, Harrison R, Jacklin P, Jarrett C, Jayasuriya R, Lewis L, Parker S, Roberts J, Thompson S, Wainwright P. Virtual outreach: a randomised controlled trial and economic evaluation of joint teleconferenced medical consultations. Health Technol Assess. 2004 Dec;8(50):1-106, iii-iv.
  585. Wallen M, O'Flaherty SJ, Waugh MC. Functional outcomes of intramuscular botulinum toxin type a and occupational therapy in the upper limbs of children with cerebral palsy: a randomized controlled trial. Arch Phys Med Rehabil 2007;88(1):1-10.
  586. Wallen MA, O'flaherty SJ, Waugh MC. Functional outcomes of intramuscular botulinum toxin type A in the upper limbs of children with cerebral palsy: a phase II trial. Arch Phys Med Rehabil 2004;85(2):192-200.
  587. Wang JC, Lai CJ, Wong TT, Liang ML, Chen HH, Chan RC, Yang TF. Health-related quality of life in children and adolescents with spinal dysraphism: results from a Taiwanese sample. Childs Nerv Syst. 2013 Sep;29(9):1671-9. doi: 10.1007/s00381-013-2117-5. Epub 2013 Sep 7. PMID: 24013337
  588. Wark EK, Hodder YC, Woods CE, Maguire GP. Patient and health-care impact of a pilot rheumatic heart disease screening program. J Paediatr Child Health. 2013 Apr;49(4):297-302. doi: 10.1111/jpc.12154. Epub 2013 Apr 1.
  589. Warnink-Kavelaars J, de Koning LE, Rombaut L, Menke LA, Alsem MW, van Oers HA, Buizer AI, Engelbert RHH, Oosterlaan J, on behalf of the Pediatric Heritable Connective Tissue Disorder study group. Heritable connective tissue disorders in childhood: Decreased health-related quality of life and mental health. American J Med Genetics Pt A. First published: 08 April 2022 https://doi.org/10.1002/ajmg.a.62750
  590. Warschburger P., Landgraf J.M., Petermann F., & Freidel K. Health-related quality of life in children assessed by their parents: Evaluation of the psychometric properties of the CHQ-PF50 in two German clinical samples. Quality of Life Research 2003;12(3):291-301.
  591. Waters E, Davis E, Mackinnon A, Boyd R, Graham HK, Kai Lo S, Wolfe R, Stevenson R, Bjornson K, Blair E, Hoare P, Ravens-Sieberer U, Reddinough D. Psychometric properties of the quality of life questionnaire for children with CP. Dev Med Child Neurol 2007;49(1):49-55.
  592. Waters E, Davis E, Nicolas C, Wake M, Lo SK. The impact of childhood conditions and concurrent morbidities on child health and well-being. Child Care Health Dev. 2008 Jul;34(4):418-29. Review. PMID: 19154551 [PubMed - indexed for MEDLINE]
  593. Waters E, Davis E, Ronen GM, Rosenbaum P, Livingston M, Saigal S. Measuring the quality of life of children with cerebral palsy: comparing the conceptual differences and psychometric properties of three instruments. Dev Med Child Neurol. 2009 Jun 22. [Epub ahead of print] Dev Med Child Neurol. 2009 Aug;51(8):660-9.
  594. Waters E, Doyle J, Wolfe R, Wright M, Wake M, Salmon L. Influence of parental gender and self-reported health and illness on parent-reported child health. Pediatrics 2000; 106(6):1422-8.
  595. Waters E, Salmon L, Wake M, Hesketh K, Wright M. The Child Health Questionnaire in Australia: reliability, validity, and population means. Australian and New Zealand Journal of Public Health 2000;24(2):207-210.
  596. Waters E, Salmon L, Wake M. The parent-form of the Child Health Questionnaire in Australia:Comparison of reliability, validity, structure, and norms. J Ped Psychol 2000;25(6):381-391.
  597. Waters E, Stewart-Brown S, Fitzpatrick R. Agreement between adolescent self-report and parent reports of health and well-being: results of an epidemiologic study. Child Care Health Dev 2003:29(6):501-9.
  598. Waters E, Wake M, Landgraf J, Wright M, Ceccato L, Hesketh K. Cross-cultural comparisons of health-related quality of life between Australian and U.S. children. Abstract presented at the XXII International Congress of Pediatrics, Amsterdam, The Netherlands. August 1998.
  599. Waters E, Wake M, Landgraf J, Wright M, Hesketh K, Ceccato L. Psychosocial and physical health status of Australian children: Child Health Questionnaire Normative data. Abstract presented at the XXII International Congress of Pediatrics, Amsterdam, The Netherlands. August 1998.
  600. Waters E, Wright M, Wake M, Landgraf J, Salmon L. Measuring the health and well-being of children and adolescents: a preliminary comparative evaluation of the Child Health Questionnaire in Australia. Ambulatory Child Health 1999;5:131-141.
  601. Waters EB, Salmon L. Trans-country adaptation and short form derivation of the Child Health Questionnaire in Australia. Quality of Life Research 2000; 9(3):281 (abstract #1576).
  602. Waters EB, Salmon LA, Wake M, Wright M, Hesketh KD. The health and well-being of adolescents: a school-based population study of the self-report Child Health Questionnaire. The Journal of Adolescent Health 2001;29(2):140-149.
  603. Waters EB, Wake MA, Hesketh KD, Ashley DM, Smibert E. Health-related quality of life of children with acute lymphoblastic leukaemia: comparisons and correlations between parent and clinician reports. International Journal of Cancer 2003;103(4):514-518.
  604. Waters EB. Association and agreement between adolescent and parent reports of health and wellbeing. Quality of Life Research 2000;9(3):301 (abstract #1598).
  605. Watson R, Asaro LA, Hertzog JH, Sorce LR, Kachmar AG, Dervan LA, Angus DC, Wypij D, Curley MAQ; RESTORE Study Investigators and the Pediatric Acute Lung Injury and Sepsis Investigators (PALISI) Network. Long-Term Outcomes after Protocolized Sedation versus Usual Care in Ventilated Pediatric Patients. Am J Respir Crit Care Med. 2018 Jun 1;197(11):1457-1467. doi: 10.1164/rccm.201708-1768OC.
  606. Watson R, Asaro LA, Hutchins L, Bysani GK, Killien EY, Angus DC, Wypij D, Curley MAQ; RESTORE Study Investigators. Risk Factors for Functional Decline and Impaired Quality of Life after Pediatric Respiratory Failure. Am J Respir Crit Care Med. 2019 Apr 29. doi: 10.1164/rccm.201810-1881OC. [Epub ahead of print]
  607. Weintraub N, Rot I, Shoshani N, Pe'er J, Weintraub M. Participation in daily activities and quality of life in survivors of retinoblastoma. Pediatr Blood Cancer. 2011 Apr;56(4):590-4. doi: 10.1002/pbc.22790. Epub 2010 Dec 22.
  608. Weiss MD, Gibbons C, Goodman D, Hodgkins P, Landgraf JM, Faraone SV. Moderators and Mediators of ADHD and Quality of Life Outcomes in Adults Treated for ADHD. 2010 J Clin Psych 71(4):381-391.
  609. Westendorp T, Verbunt JA, Remerie SC, Smeets RJ. Responsiveness of the Child Health Questionnaire-Parent Form in adolescents with non-specific chronic pain or fatigue. Eur J Pain. 2013 Sep 10. doi: 10.1002/j.1532-2149.2013.00393.x. [Epub ahead of print. PMID: 24019235.
  610. Wiklund I, Raluy-Callado M, Stull DE, Jangelind Y, Whiteman DA, Chen WH. The Hunter Syndrome-Functional Outcomes for Clinical Understanding Scale (HS-FOCUS) Questionnaire: evaluation of measurement properties. Qual Life Res. 2012 May 19. [Epub ahead of print]
  611. Wilkins AJ, O'Callaghan MJ, Najman JM, Bor W, Williams GM, Shuttlewood G. Early childhood factors influencing health-related quality of life in adolescents at 13 years. J Paediatr Child 2004; Health, 40(3): 102-9.
  612. Wilkins-Shurmer A, O'Callaghan MJ, Najman JM, Bor W, Williams GM, Anderson MJ. Association of bullying with adolescent health-related quality of life. J Paediatr Child Health,2003;39(6):436-41.
  613. Williams DL, Gelijns AC, Moskowitz AJ, Weinberg AD, Ng JH, Crawford E, Hayes CJ, and Quaegenbeur JM. Hypoplastic left heart syndrome: Valuing the survival. J Thorac Cardiovasc Surg 2000:119(4 Pt 1):720-31.
  614. Williams RV, Travison T, Kaltman JR, Cecchin F, Colan SD, Idriss SF, Lu M, Margossian R, Reed JH, Silver ES, Stephenson EA, Vetter VL; the Pediatric Heart Network Investigators. Comparison of Fontan Survivors with and without Pacemakers: A Report from the Pediatric Heart Network Fontan Cross-sectional Study. Congenit Heart Dis. 2013 Jan-Feb;8(1):32-9. doi: 10.1111/j.1747-0803.2012.00692.x. Epub 2012 Jul 4.ahead of print]
  615. Willis CD, Gabbe BJ, Butt W, Cameron PA. Assessing outcomes in paediatric trauma populations. Injury 2006;37(12):1185-96.
  616. Winthrop AL,Brasel KJ, Stahovic L, Paulson J, Schneeberger B, Kuhn EM. Quality of life and functional outcome after pediatric trauma. J Trauma,2005;58(3): 468-73; discussion 473-4.
  617. Wittlieb-Weber CA, Paridon SM, Gaynor JW, Spray TL, Weber DR, Brothers JA. Medium-term outcome after anomalous aortic origin of a coronary artery repair in a pediatric cohort. J Thorac Cardiovasc Surg. 2013 Aug 26. pii: S0022-5223(13)00791-5. doi: 10.1016/j.jtcvs.2013.07.022. [Epub ahead of print. PMID: 23988284
  618. Wren TA, Otsuka NY, Bowen RE, Scaduto AA, Chan LS, Dennis SW, Rethlefsen SA, Healy BS, Hara R, S. Outcomes of lower extremity orthopedic surgery in ambulatory children with cerebral palsy with and without gait analysis: Results of a randomized controlled trial. Gait Posture. 2012 Dec 6. pii: S0966-6362(12)00438-9. doi: 10.1016/j.gaitpost.2012.11.018. [Epub ahead of print]
  619. Wren TA, Sheng M, Bowen RE, Scaduto AA, Kay RM, Otuska NY, Hara R, Chan LS. Concurrent and discriminant validity of Spanish language instruments for measuring functional health status. J Pediatr Orthop, 2008;28(2):199-212.
  620. Wren TA, Sheng M, Hara R, Otuska NY, Bowen RE, Scaduto AA, Kay RM, Chan LS. Agreement among three instruments for measuring functional health status and quality of life in pediatric orthopaedics. J Pediatr Orthop, 2007;27(2): 233-40.
  621. Wrotniak BH, Schall JI, Brault ME, Balmer DF, Stallings VA. Health-Related Quality of Life in Children With Sickle Cell Disease Using the Child Health Questionnaire. J Pediatr Health Care. 2012 Nov 7. doi:pii: S0891-5245(12)00190-3. 10.1016/j.pedhc.2012.09.004. [Epub ahead of print]
  622. Wulffraat N, van der net JJ, Ruperto N, Kamphuis S, Prakken BJ, Ten Cate R, Van Soesbergen RM, Van Rossum MA, Raat H, Landgraf JM, Kuis W, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Dutch version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S111-S115.
  623. Wyatt K, Edwards V, Franck L, Britten N, Creanor S, Maddick A, Logan S. Arch Dis Child. 2011 Jun;96(6):505-12. doi: 10.1136/adc.2010.199877. Epub 2011 Feb 24. PMID: 21349889
  624. Yang P, Hsu HY, Chiou SS, Chao MC. Health-related quality of life in methylphenidate-treated children with attention-deficit-hyperactivity disorder: results from a Taiwanese sample. Aust N Z J Psychiatry 2007;41(12):998-1004.
  625. Yang Q, Zhang X, Cheng Q. [Quality of life and its influencing factors in small for gestational age infants during early childhood]. Zhongguo Dang Dai Er Ke Za Zhi. 2016 Apr;18(4):355-60. [Article in Chinese].
  626. Yi MS, Britto MT, Wilmott RW, Kotagal UR, Eckman MH, Nielson DW, Kociela VL, Tsevat J. Health values of adolescents with cystic fibrosis. J Pediatr, 2003;142(2):133-40.
  627. Yoo HJ, Kim DS, Lai JS, Cella D, Shin HY, Ra YS. Validation of Pediatric Functional Assessment of Cancer Therapy Questionnaire (Version 2.0) in Brain Tumor Survivor Aged 13 Years and Older (Parent Form)(PedsFACT-BrS Parent of Adolescent). J Korean Neurosurg Soc. 2011 Mar;49(3):147-52. Epub 2011 Mar 31.
  628. Zatzick DF, Jurkovich GJ, Fan MY, Grossman D, Russo J, Katon W, Rivara FP. Association between posttraumatic stress and depressive symptoms and functional outcomes in adolescents followed up longitudinally after injury hospitalization. 1: Arch Pediatr Adolesc Med. 2008 Jul;162(7):642-8.
  629. Zebracki K, Palermo TM, Hostoffer R, Duff K, Drotar D. Health-related quality of life of children with primary immunodeficiency disease: a comparison study. Ann Allergy Asthma Immunol. 2004 Dec;93(6):557-61.
  630. Ziaian T, Sawyer MG, Reynolds KE, Carbone JA, Clark JJ, Baghurst PA, Couper JJ, Kennedy D, Martin AJ, Staugas RE, French DJ. Treatment burden and health-related quality of life in children with diabetes, cystic fibrosis and asthma. J Paediatr Child Health 2006;42(10):596-600.
  631. Zuidema WP, Oosterhuis JWA, Zijp GW, van Baren R, de Lange-de Klerk ESM, van der Heide SM, van der Steeg AFW, van Heurn LWE. Sports activity in adolescents in the Netherlands with a pectus excavatum; the impact of surgery. J Pediatr Surg. 2018 Nov 27. pii: S0022-3468(18)30770-X. doi: 10.1016/j.jpedsurg.2018.11.004. [Epub ahead of print]
  632. Zuidema WP, Oosterhuis JWA, Zijp GW, van der Heide SM, van der Steeg AFW, van Heurn LWE. Early Consequences of Pectus Excavatum Surgery on Self-Esteem and General Quality of Life. World J Surg. 2018 Feb 6. doi: 10.1007/s00268-018-4526-9. [Epub ahead of print]
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